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Topic At wits end tonight Go to previous topic Go to next topic Go to higher level

By lynn On 2009.07.26 19:49
We were up at 2:30 a.m. for a sheet change. I should have known today would be bad. My husband has talked to me about 8 times today about the strings of mucous hanging from his teeth and mucous in his throat. He has complained of this for years but seems to be obsessed now. We have spoken to the dentist, neurologist (3), ent and gi docs. He has had swallow studies and he has problems. there is nothing we can do about this and I have told him so many times that I wish there was something we could do. I'm frustrated that I can do nothing for him and it started to drive me crazy this p.m. I wonder if this is more mental now. I can't get him off of this.

By Pearly4 On 2009.07.26 19:56
My mother's obsessions used to drive us crazy too. She always had pus coming from her eyes! This was after her cataract surgery and apparently the initial warning to watch for signs of infection got stuck somewhere.

Is there something he THINKS will help? It really does pay off to play along with these things -- for instance, we reguarly used normal eye drops to "treat" my mother's eye infections, and a stickie lint roller to pick up the "bugs in the bed" and finally placed her mattress on the floor when she complained she was falling out of bed all night or getting stuck in the safety railings. If there's something he thinks helps -- a harmless mouth wash, or sore throat spray or the "magic monster spray" that kids used to keep the monsters out of their bedrooms -- go for it! Maybe sucking on hard candies or chewing gum?

By lynn On 2009.07.26 21:11
Pearly4-You may be on to something here. Do you really think it's just an obsession? I'll look at the drug store for something this week and give it a shot. Maybe he does have dementia now. I'm also wondering if an anti-anxiety drug at night wouldn't help.

By sachet On 2009.07.26 21:25
the Dr perscribed Valium for my husband as a sleep aid years ago---now we use about a half tablet when he gets really ajatated and it seems to help otherwise you can be up and down all night with the spiders or cat hair or what ever else comes to their minds

By WitsEnd On 2009.07.27 08:43
Do you see any actual symptoms of his complaints? When he is eating or otherwise totally focused on some activity does he still complain? Have you tried giving him a minty tasting drink or a decongestant or something like Musinex as a "cure" and did it make a difference? If the answer to all of these are "no" then it's probably a fixation.

Check with the neuro. There's anti anxiety drugs that should help if it is a fixation--but you need to make sure they don't interact with anything else he is taking.

Hang in there. We all get there at one point or another.....thus my moniker. You'll get through it. We're all pulling for you.

By Pearly4 On 2009.07.27 16:21
The others suggestions are good and shouldn't be discounted but nothing helped my mother. She was on anti-aniety meds and other meds but the obsessions were just obsessions. Gave us some giggles once in a while, but mostly they were a pain in the neck and we found it easier to join her reality than try to enforce ours.

By annwood On 2009.07.27 22:54
Pearly4, I have to agree with you. If it is a true obsession you will make yourself crazy trying to talk them out of it. You may think it is resolved and bingo they are on it again. It is far easier and less stressful for all concerned if you join in their reality.

By Ilovemydog On 2009.07.28 10:38
Right now my father's obession are batteries. He buys them in bulk and in all different sizes. He does not have any electronics to use them in.

By lynn On 2009.07.29 19:53
Now my husband says it's the mattress causing the thick mucous in his mouth. He said he can not open his mouth or pull his teeth apart at night. I bought some lip balm and mouth spray for dry mouth tonight. I'm hoping this will at least reduce his anxiety. I never thought I'd be running errands for my husband's hallucinations!

By annwood On 2009.07.29 22:02
My husband also bought batteries with no apparent need for them. It made me crazy! In fact you will yourself start to buy into the irrational thinking. Living with the dementia, obsessions and hallucinations always reminded me of Alice in Wonderland. Because it is their particular reality at the time you need to remember that there may be a lot of fear on their part. I believe it is best to attempt to keep them as calm as possible. It does no good to try to talk them out of the hallucination. Finding tricks (like the mouth spray) is a very good tactic.

By bandido1 On 2009.07.30 12:46
Annwood: Do you think my spouse can supply the 27 virgins I hallucinate ?? lol Bob C

By annwood On 2009.07.30 15:55
That might be a stretch, Bob. Didn't realize your were Muslim (Ha,Ha)

By WitsEnd On 2009.07.30 16:20
Before you run out to help locate a couple of those virgins for Bob (after he converts)...and if the other remedies don't might try leaving a light on at night and giving him a different pillow (maybe one of those egg crate jobs) to see if that helps any.

By lynn On 2009.07.30 22:05
The lip balm and mouth spray have taken the edge off. My husband is truly scared and so we will address it tomorrow with his neurologist. I have written the doctor a note to read before hand. I'm quite sure he's hallucinating since he's so scared. I hate that we have now come to this.I did sign him up for adult day services which will start in 2 weeks. It's time and the center is wonderful and 5 minutes from the house! I'm hoping that being engaged with other people will benefit him. These last few weeks he's been bored and I feel this contributes to his anxiety.Thanks for all of your post and Bob-keep dreaming about those virgins.

By lynn On 2009.07.31 15:02
I guess I'm having good luck. My husband told me today that the products(lip balm and mouth spray) I bought for his mucous problem had mostly cured the problem. We saw the neurologist this a.m. and he gave us a script for klonapin. We'll start tonight. Anyone have any experience with this one?

By WitsEnd On 2009.08.03 13:36
Yes. It helped some.

By lynn On 2009.08.03 20:16
Need advice. My husband started on 1/2 tablet of 1.0 mg klonipin at bedtime three nights ago. first 2 nights all was quiet. Last night he got out of bed an hour after bedtime to tell me a metal plate was in his mouth and he could not breathe. I checked his mouth, calmed him down and off to sleep he went for the rest of the night. today, he was very tired from the effects of the med. I gave him another 1/2 tablet tonight and will call the neurologist tomorrow to see if .025mg will be enough to get rid of this obsession. Tell me caregivers what exactly is this called? Is it a hallucination? for those who have dealt with dementia, was this a characteristic? My husband has yet to be diagnosed with dementia and scores very high on the mini-mental test they give him at check-ups. I just don't know what's up or maybe I'm in denial and need a reality check.

By tryinghard On 2009.08.03 21:32
I'm not familiar with the medication klonipin but my dad started having hallucinations a while back. He would see people in his room and the way he would describe them is as if it were a party or he would see water everywhere, coming down the walls, in pools on the floor. The neurologist put him on haldol and that helped alot, without it he can't function at all. I've been told the hallucinations are part of pd and dementia.

By LOHENGR1N On 2009.08.03 23:35
Tryinghard, hallucinations can also be a side effect of the Anti-Parkinson's medications We take. They can be a mess to try to figure out. Take care, best of luck and hang in there.

By susger8 On 2009.08.04 08:01
Technically, a hallucination is visual (seeing something that isn't there), and a delusion is a belief that's contrary to fact. In the real world, that's not an important distinction, but it's useful when talking to doctors to use their terminology. Your dad seems to be having delusions rather than hallucinations.

My experience is that my dad's garden-variety neurologist had no experience in treating the psychiatric aspects of PD and refused to even try any psych meds. I'm having better luck (so far) with a new movement disorder specialist. He also works with a geriatric psychiatrist. Changing the PD meds, or adding psych meds, doesn't help everyone, and may not help long term, but is certainly worth a try.


By tryinghard On 2009.08.04 13:56
Thanks Lohengr1n. He's been on so many different pd meds it's hard to keep track. right now he's on stalevo. been on that one for at least 4 years now and his neurologist is pretty much saying there's not much more that can be done. And I just switched to this neurologist a few months ago because his previous one wouldn't listen to anything i had to say regarding my dads mood swings, behavioral changes etc. I've read in some of the posts here the term movement specialist or movement dr? Can anyone give me a heads up on what that is? (besides the obvious lol)

By susger8 On 2009.08.04 15:02
Movement disorders is a subspecialty of neurology -- the specialist has additional training and knowledge of PD and other movement disorders. They have more experience with PD and are usually more up on current research and medications.

Lohengr1n helped me find one by giving me this number to call --

1-888-400-2732. This toll free number will ring in the American Parkinson Disease Association Information & Referral Center.

By WitsEnd On 2009.08.04 17:59
suger8 makes a good point about delusions vs. hallucinations. I would also suggest calling the pharmacist and asking if the behavior could be a side effect of any drugs or combination of drugs as well.

By tryinghard On 2009.08.05 09:20
thanks for the info! I'll call the pharmacist and the 800 # and hopefully I can find a dr close to us.

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