For those who care for someone with Parkinson's disease
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By hubb On 2009.11.21 20:30
After reading the Forum for several months now, I wanted to add my thanks for the contributors. You have helped me thru some good times and some bad times. My husband of 52 years was diagnosed 23 years ago and fortunately for us, really didn't change our lives until about a year and a half ago, and old PD caught up to him and is catching up still with all the classic symptoms that you read and hear about. I'm not sure if he's in the beginning of dementia since he also has macular degeneration and is legally blind and that diminishes his world quite a bit. He is still able to use a walker and cane but suffers from dyskensias or muscle spasms in his legs and it's beginning to be a daily occurence. We are able to dissolve a 25/100 synamet in hot water and usually that will bring some relief in about 15 minutes - cleared this with neurologist first of course. He is on one 25/100 and one 50/200 time release synamet every 4 hours but it's beginning to creep back to 3 to 3.5 hrs between doses. He is a retired Naval aviator who flew many missions in Viet Nam, retiring after 30 years' service so we are able to use VA facilities which has been great for us for both the neurologist, movement disorder specialist and meds. So we are very fortunate in so many ways I have been able to have a retired nurse who wanted to return to carektaking come in for 5 or 6 hours once a week so I can take care of our errands, grocery shopping, etc. Our children all live far away but try to get out to see us as often as they can, but so far we have been managing. I'll have to admit that caretaking is about the hardest job I have ever done especially when their personalities change - go from hope to despair in a single moment. That's why I have appreciated the Forum so much - different thoughts from different people, but we all have something in common and I am so thankful that I found this website thru our Support Group.

By annwood On 2009.11.21 22:02
Welcome - so glad you decided to post after reading for some time. Sorry that things are not going so well right now. We are here for you.

By LOHENGR1N On 2009.11.21 23:33
Welcome to the forum hubb, glad to have you. Looking forward to getting to know you and yours. Your insight will be tremendously helpful to have here. Nice to meet you.

By smith2628 On 2009.11.22 08:25
welcome to the forum. Im pretty new here and it has helped me so much. You are very lucky that your husband lasted so long without many complications. My dad just got diagnosed about two months ago and has had many issues so far. Anyways, welcome!

By lbellomy On 2009.11.22 16:06
If the muscle spasms are painful, ask your neurologist about some tizanidine(generic for Zanaflex) for him. (We also use VA and get tizanidine from them) It was the miracle med for my husband. We tried massaging his to relieve the pain and sometimes would massage for it seemed like hours. It does make him sleepy.

By dkleinert On 2009.11.23 00:38
A quirkly suggestion about muscle cramps and spasms. I read somewhere that mustard stops muscle cramps and spasms, so we started leaving a bottle of mustard, a plate and spoon by my husband's bedside. When he would wake up with a cramp or spasm, I give him mustard (which he loves so it was a good thing for him). Almost immediately the cramping and spasm stops. I know it sounds weird, but for some odd reason it works. Don't know if that would help anyone, but thought I would throw it out there.

By Mary On 2009.11.23 16:06
hubb, welcome! This is a truly wonderful forum. I feel as if many of its members are my friends. The forum members have given me more support than my family and friends were able to in that they were walking in my shoes. Hugs and blessings to you, Mary

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