Thanks for the tips - I will ask dr. about Zanaflex and can already try the mustard. At 3 a.m. when both legs are spasming, I'd try anything and everything. We have tried massage, hot showers, walking it off, the extra dosage of synamet (and the symptoms between over medicating and under medicating are the same, so that's a fine line to tread). I have tried dilligently to chart everything he ate, did, time of meds, and anything else I could think of to see if there was anything that stood out that brought on these spasms but could not detect anything...just think PD has a mind of its own and there's no rhyme nor reason.|
In the many years we have been dealing with PD, some of the things that have helped us is to join in PD associations, national and state, as you get newsletters which are helpful, notices of symposiums which are always helpful. We went to many symposiums and picked up lots of literature, so have a shelf full of PD material and I actually re-read them every now and then when a new problem pops up, which you can just count on happening. Also support groups are very helpful. In our state, the PD assoc. has started a registry of PD patients so that when trial offers are available, you are notified in case you wish to participate. And they also found that PD patients seem to be in clusters and those were mainly agricultural, thereby adding credence to the thought that pesticides have something to do with it. But I agree with others who have mentioned predisposition to PD as only some working with pesticides contract PD while others in the same situation do not. Like everything else with PD, it's a big puzzle. We have often wondered if my husband's delayed symptoms was due to the fact that when he was originally put on medication (about 3 years after original diagnosis) it was selegeline (which was in disfavor with neurologist in US at the time but widely used in Europe) and 2000 units of Vit. E, which it was later determined was of no particular help in PD...just things you wonder about when dealing with PD. Just hope that one of these days they find out why we get PD and then they'll be able to find out how to cure it. At least, the disease gets lots more publicity now than it ever has in the past and we don't feel so alone in this battle, especially with the Forum here to help us, and especially when a little levity is thrown in...difficult to keep a sense of humor some days, but that does help a lot.