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Topic Intelligence and PD Go to previous topic Go to next topic Go to higher level

By karolinakitty On 2010.01.02 21:47
One thing we do for extra cash is sell things on the weekend at a flea market. We just switched over to a different one because of it being inside and heated. I met the daughter of one of the other vendors today. not sure if she was a doc or what her med degree was, but she recognized the PD and asked me about him. She said she didn't want to be butting in but could he possibly have had an executive position or if he was of high intelligence. i told her he's a member of Mensa and she proceeded to tell me about her thesis she did. Her thesis was on PD and High Intelligence. I don't know what all she based things on but in her research she found a very large percentage of people with a high IQ had PD. She then took that and related it to, and i'll put this as i took it, an "overusage" of certain areas of the brain causing the dopamine levels to be down. Like I said, i don't know all the details but next time i see her(she's supposed to stop by tomorrow) i am going to ask her if she has a copy of her thesis for me to read. Technical or not i would love to see where she got her data and what she found as her conclusion.
She would like to talk to me more because she found that here in SC there are such few PD specialists and the care they get here is marginal at best. While there are neuros there are few that as we all know really know the disease. I told her about our chats on that and how some caregivers play with the meds to get them right for their PDr. That it is not just here in SC. It is across the board form what I've seen here. When and IF i can get her thesis i will share the results to anyone who wants it. Of course i would tell her that also.

On a different subject i forgot to mention that on our last doc visit, he had upped his Requip in a very bad way. He was taking 4mg twice a day. The doc, on this new prescription to 5mg made it for 3x a day. Now doing all the research i have done, it was very clear to me that if i followed that last script, i probably would be dealing with a lot more side effects than normal. He was upping it from 8mg per day to 15mg per day, almost doubled. Yikes, just the nausea alone would have put him down hard, let alone the dizziness then probably halucinations and whatever.

By annwood On 2010.01.02 22:32
I have read about the correlation of PD and high IQ. Mayo has a report online. It was an incidental finding they made in a PD study and they are now doing a controlled study.

By karolinakitty On 2010.01.03 06:06
I will check that on out too....thanx annwood

By lurkingforacure On 2010.01.03 08:44
My husband also has very high IQ, according to the "tests", genius. He is a software developer and I have heard others call him "the Mozart of programming". His intelligence isn't limited to programming, though, he has a real knack for really understanding everything, it can be maddening to people like me who don't!

This is particularly interesting because the nutritional oncologist we have seen, only twice so far, make some comment about this, overuse of the brain cells. I know my husband, in his programming heyday, would program for HOURS at a time, usually in the wee hours of the night. This is not uncommon, and most companies who have programming departments keep coolers full of Mountain Dew and other highly caffeinated drinks on hand for their developers. When they "get on a groove", as they call it, they don't want to run out of gas and get sleepy.

I will ask the nutritional oncologist about this more the next time we see him. Thanks for this, I didn't know about the Mayo study. Speaking of Mayo, did anyone read the New Year's Day announcment by Mayo of Arizona saying they were dropping their Medicare patients? 3,000 of them. They now have to pay out of pocket if they want to continue seeing their doc there.

By curveball On 2010.01.07 16:47
I am a new user. My husband is 64 and was diagnosed 14 months ago, though in hindsight he's probably had PD for sometime. I was interested in this posting since he was known for his intelligence and humor - these were his distinguishing characteristics, and the first he was robbed of when the PD became obvious. From what I can tell he is in mid-late stages. He doesn't drive anymore, suffers from imbalance, confusion, hallucinations sometimes, and frozen legs and feet at night. I work full time and will have to for awhile yet. I believe he has good docs and is being appropriately treated. I seem to be passing through the worst of the resentment and angry phase though it still hits, esp at night, when I am afraid of not getting enough sleep to function in the morning. I can see that he is better when I feel relaxed, so I strive to be this way as much as I can. I don't know if other spouses experience this, but I struggle with feelings of desperation and sadness that this has happened to us. As another spouse said recently, "I'm the man now" and it's very different from the relationship we had.

By karolinakitty On 2010.01.08 06:23
Firdt off Welcome to the board.....and you are not alone. Mine was diagnosed a year ago, but most recently was diagnosed PDplus. desperation and sadness is what this year has had at timesfor me. After diagnosis a year ago we had a period of about 6 months that he progressed realy fast, but is now leveled off. During that progression i cried a lot. We have only been together 5 years and i had a hard time with the progression thinking at times about how little time we had left. I was mad and angry since we have not had much time together. I've switched gears and as you try to be upbeat and add a little humor as we go.
After this visit to the Movement disorder clinic, and doing research finding out he had many symptoms of all, but not all of one, while the progression seem s to be faster with these with a life expectancy of only 5-7 years, and maybe 15 i was crushed, then woke up and thought Hey we'll take 15... I told him only HE could be this rare and hard to pinpoint. It's just his nature, has to be the oddball......
Most important don't be afraid to ask questions, everyone is here to help if we don't have an answer we'll let ya know too......

And yes, i'ts hard to become the man now, especially when your spouse has been the "daddy" and been taking care of things. It's hard, but as mine says... please, just let me have my dignity,you can take over whatever, but let me have my dignity.......

By Emma On 2010.01.08 08:49
curveball, I will echo karolinakitty - welcome to the board and you are definitely not alone. Most, if not all, of us have had the same feelings you do. My husband is 68 and was diagnosed about 9 years ago. He is now in the advanced stages. Throughout this disease he has stayed pretty consistent with his symptoms for two or three years at a time, then takes a rapid and distinct step down. He has all of the symptoms you mention and then some, including obsessions and dementia (in fact, his actual diagnosis is Diffuse Lewy Body Disease aka Lewy Body Dementia). I have run the gamut of emotions from despair, depression, anger, resentment, hopelessness, you name it. I wouldn't wish this on my worst enemy, but through it all I love my husband. I'm not a perfect caregiver (and he's not a perfect patient) but I do the best I can. The ongoing stress and feeling of being overwhelmed is the hardest thing for me to deal with. Not only are you "the man" now, you're still the woman too and still have all of your old traditional roles and responsibilities on top of the new ones. This board has made a HUGE difference to me and I truly think that I am coping better because of it. Just being able to get information, vent, and know that others are dealing with the same things helps to keep me sane. I hope that will be true for you too.

By curveball On 2010.01.08 11:59
Thank you all so much for your responses. I find such solace in knowing that I am not alone in this, though certainly don't wish it on anyone. Like Karolinakitty, my husband and I have been together and married a relatively short time - 15 years (I was 45 when we met and fell in love). I had been divorced and was raising my two children. He came along and was so competent and loving and smart and funny. He never took himself too seriously, but he was serious about taking care of me, and it was with relief that I turned my life over to him. So now I am trying not to dwell on this "new normal" but rather on making good memories. What I don't want is to remember my last years with him as an angry, impatient, and self pitying fool-what a waste. But it isn't easy as you all know. I cry easily and sometimes fear that if I really let myself really cry, I will never stop. I was looking today on the Mayo clinic website for the article in which high IQ and Parkinson's was referenced. Do you remember which article that was? Again, thank you for this lifeline.

By dkleinert On 2010.01.11 01:57
karolinakitty: Wow - interesting connection to PD. My husband was an architectural engineer for 30 years - he was the one everyone went to to solve problems and he was the local resource for everything.....his door was always swinging with people coming to Joe for help - he seemed to always have the answers. He can do any crossword puzzle out there, does the Jumble in his head without even needing a pen and difficult Suduko is nothing for him. He, too, was always known for his intelligence and wit. He has a great sense of humor. So interesting about that connection - it fits him.

One thing I did want to mention. In a research article on PD I read last year I read about a study that had linked nutrition to PD. It stated the results of that research showed that a chemical - and I can't remember the complex name for it - was in high concentrations in Dr. Pepper and Mountain Dew. It said they had found a very direct correlation between those soft drinks being ingested and PD onset. When I read it I was stunned. My husband used to drink a liter+ of Dr. Pepper a day at his job at IBM. He worked long hours and drank so much of it. Also, that same article said that there is now a direct link between high pesticide and atificial preservatives consumption in food and drink and PD. Even though my husband has not drank Dr.Pepper in many years, it did do damage we are certain, based on that article. My husband could not have known at the time, that things were adding up and killing off his dopamine receptors - but even at age 38, his sense of smell and taste was gone and he had tingling in his fingers and numbness in the tops of his thighs. We just didn't know what was really going on.....

Please do give us the information on that fascinating research - thanks for sharing it. I read everything I can find on PD.

curveball: Stay with us on this site. It will become your life line - it has saved my sanity and life, literally.

By karolinakitty On 2010.01.11 13:05
dk ... my guy, especially after becoming a chef, stays away as much as possible from preservatives and fast food. He says it has been our downfall. I had taken 2 years of nutrition based classes, as i was going for dietician, before i left school and always thought our nutrition has gone down hill with all these prefabbed foods. It's just not natural to get beef stew from a box. :)
I'm sure someday they'll find the correlation between all this.....


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