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Topic OCD behaviors Go to previous topic Go to next topic Go to higher level

By parkinit On 2010.04.23 19:21
I'm new on this site, and maybe it's been a topic in the past, but could you please humor me and tell me what other OCD behaviors (I've heard of a few here already) you are experiencing?

My own hubby has decided that his body needs to be shaved - yes, everything. I've even helped him shave his back at times. He feels that hair all over his body can possibly grown under his skin (some of it does curl down around his waistline and grows back under the skin, etc., but NOT all over his body!). I mentioned this to one doctor that he is OCD, but the doctor just laughed it off and said, "So is my wife!" Unfortunately (saying this tongue in cheek because we have to laugh - right?), he is not OCD about the things I wouldn't mind - like keeping the house clean! :)

By caregivermary On 2010.04.24 11:05

Welcome. Here are some of them and I'm sure others will add to the list.

gambling, porn, sex, shopping(hsn, internet), eating, direct mail sweepstake offerings, fixing things that aren't broken, picking at sores or other things

Is your husb with a neurologist? If so, is that the Dr. that laughed off the issue? Unfortunately, this may not be a good sign for continued support from this Dr. I'm not saying you should change your Dr. but I'm sure after reading some of the post here it's doesn't continue to be as funny as others may think. Some Drs do not understand all of the side issues associated with Parkinson's and dismiss behavior like this as ordinary.

If you get a chance to read back through the posts you will find many stories relating to "keeping the house clean". In fact, disorganization does seem to be a common trait for some PDers.

Keep in touch here because you will learn many things most Dr.s will not mention.

By jburkhart On 2010.04.24 16:14
Fixing things that are not broken!!!! I thought that was just my husband. The problem is that he takes things apart and then can't put them back together. Before he got sick he had his own business, HVAC repair. He could fix anything.

By shirley On 2010.04.24 19:16
My husband also is constantly repairing things...of course if he would leave them alone to start with, they wouldn't need repair. Everything is always needing new batteries even if the batteries were changed a few days before. Currently he has a table in our family room covered in tools. He's been repairing windows and extension cords. He also had his own business; a sheet metal company making duct work for HVAC systems.

By parkinit On 2010.04.24 21:22
I had someone else (my PD caregiver mentor locally) tell me that her husband "fixed things that weren't broken." I didn't really understand at the time, but now I do. My husband had a blower for the lawn/leaves, and one part wasn't fitting on properly, so rather than try to be pateient to see what was going on, he started sawing off pieces so the piece WOULD fit. Of course, it doesn't work at all now.

By parkinit On 2010.04.24 21:30
caregivermary - Thanks for the info on keeping house clean as this is one of my huge frustrations, that I'm really working on patience for myself. Right now it is also difficult in my hubby "living within his limitations." He has fallen several times - with traumatic results including broken bokes and a subdural hematoma that led to psychosis while being treated. He starts many things because he wants to, but many times I have to finish them. For instance, this afternoon he started out with the spreader to apply something to the lawn and then wore out/couldn't walk. I had to finish.

I have also been told my our neurologist to expect my hubby to become more selfish and that if he has certain "strong characteristics" before, the advanced PD will magnify those characteristics. Stubbornness is one such characteristics - heaven help us! My husband starts these very worthy projects or volunteer activities and then often leaves it to me to coordinate. I'm exhausted. He has a will and a desire, but he cannot follow through due to this illness and I'm trying to juggle how to care for him, so no to him regarding new projects and most importantly look out for his well-being while allowing him independence - as much as is safe for all of us.

By LOHENGR1N On 2010.04.25 00:40
Just a thought as I read kk's post. I used to be a welder, I could take a piece of metal, cutting torch and welder, take a blueprint and fabricate just about anything you can make out metal. Before that I did carpentry and roofing. Now I slop My coffee, stumble and fumble around......slur my words and wrestle with the remote and microwave. It might be that we tinker because as was said we worked jobs making and fixing stuff. Now well you've all alluded to the fact that we don't have much to do all day except to feel in our minds useless. Most of Us remember how and what we could do and if anyone wants to call it stubbornness you can but We refuse to accept to be useless. Please don't hover over me I can make my own toast...but....please do hover over me if I decide to go run a chainsaw alone!

I know it's with love in your hearts you try to keep Us safe! Remember before Parkinson's that was our job keeping our family's safe and provided for. So keep in mind that yes Parkinson's Disease takes away from Us but to do that it must pry it away from our trembling fingers grudgingly even if it means putting the cows in the front yard to keep the lawn mowed ;)

So is it obsessive compulsive disorder? If we whack our thumb 30 times in a row before putting the hammer down probably, if it's tinkering maybe, maybe not. There are things that are and they are not funny, they've been mentioned here on the forum and must be hell to go through. So kk, is it obsessive behavior or the need to be needed? It just might be our need to feel useful and what happens if you start to feel you really are useless? Depression, giving up on everything, a what's the use outlook.

Caregivers if your loved one screws it up please try and not dwell on it, we know we did and don't need to have it pointed out assured next time we'll get it fixed....... or not. Take care, best of luck and hang in there.

By dkleinert On 2010.04.25 04:10
My pdr husband is obsessed with his Nintendo DS. Before he went into the hospital for his knee surgery I thought it might be something he would like that he could hold in his hand and do different things with. We went shopping for a refurbished DS and 2nd hand games. He has Solitare and a bunch of other and a Brain word game he loves. He can sit in his recliner for 8-12 hours a day and sometimes does. I know on the days when I work when his PT is not with him that is all he does. The OCD is amazing. I am only glad it is the DS that he is obsessed with now. Before the hospital visit, it was books on tape. I was checking out and returning them so fast the library almost could not keep up because he could order them online from the library and then would tell me to pick them up. Now, after the DS - he has no interest in books on tape at all. My sister sent him several for his convalescence after his knee surgery, and he has not even opened them....funny how OCD is.

By caregivermary On 2010.04.25 18:17

I do believe most of the behavior is OCD.

By susger8 On 2010.04.26 09:05
My dad, who is a mechanical engineer, also fixes things that don't need fixing. When the remote for the TV doesn't work, it's usually because he replaced the batteries and put them in backwards.

It's very sad for me to watch this, since he fixed *everything* in our house -- TVs, plumbing, cars, you name it. We never had a repairman in the house.

At present his eyesight won't allow him to tinker, which must be frustrating. But he is getting cataract surgery next month, so we hope his vision will improve a lot.

Parkinit, back to your question. PD in itself does seem to have an obsessive component, but some of the meds can make this dramatically worse. Mirapex is the main one, Requip also. Going off those meds (gradually, with the doctor's approval) can sometimes help a lot. (Don't try to go off cold turkey, that can be very rough.)


By parkinit On 2010.04.26 23:23
KK - well put. Thank you. I understand the need to be needed on many levels - my dad has terminal cancer at 84, but he still is very active and wants to feel needed by his daughters. My sister told me not to be mad at her because dad wanted to help install a bird house and practically begged her to help. "He just wants to feel like we still need his help." I understand.

PDers are no different; they don't want to be shoved away and told not to walk lest they fall. My hubby has fallen so much, he now wears a baseball helmet when he ventures outside to protect his head (which has been hit many times). He does what he can outside because he loves to do yard work and BECAUSE IT MAKES HIM FEEL USEFUL AND NEEDED. Hugs to all of you and thanks for the comments.

By karolinakitty On 2010.04.24 21:30
Is it obsessive behavior or just the need to be needed?

I noticed that some of the posts are similiar to mine also. His thing is messing with fishing reels(a former business) powder coating(another former) and little red wagons.
Now while it might seem obsessive, here's a thought.
These men all had full time jobs, "puttering" with things. taking things apart, fixing them, making things work right. THen they had to go from being busy to just about doing nothing.
My pdr has set a course of being busy. Why? Not direct fear, i can't find the word, but afraid if he stops, he'll stop. Does that make sense? He's afraid if he stops doing something he'll stop period, he'll "freeze" up and die. Could be they are all doing the same thing, they need meaning in their life. They are not the "daddy" anymore. We, as caregivers, have taken over the finances and most of the "daddy" chores and responsibilities. They are left basically out in the cold.
Their dignity and strength are not what they used to be. By puttering with these things and trying to "fix" stuff, it keeps them moving.
As i said in another post, if the worse it gets for me is him obsessed with puttering around. I'll gladly take it. Even if it means calling in a repair man to fix what can't be "fixed" by him. It's annoying, maybe, but, mine has a shop out back so i only check in several times a day. The mess is not the main house and if tools are out everywhere, it's not a thing with me.
We, in my mind, have to preserve whatever it is they can do for as long as they can do it. Let them keep busy and be happy doing what they do........

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