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Topic OCD Behaviors Go to previous topic Go to next topic Go to higher level

By caregivermary On 2010.04.26 17:47
I believe those of us that are caring for a long term PDer are dealing with OCD behavior. I guess all that I can say is that you will know it is OCD when you are right in the middle of it.

Do I think my PDer is an unacceptable person as a result of the OCD behaviors? NO
Again, when you are this far along, you need to know what you are dealing with on a daily basis. I know not to be upset because I know what I'm dealing with. I wish I had known about the sex, porn, gambling issues before I had to experience them.

5 years ago my PDer was puttering, fixing, etc. and this went on until his mind couldn't deal with all of that activity anymore. Now he organizes paper, cards, things until he is so fatigued he can barely hold his head up.

Those of us who communicate what we are experiencing now do so not to harm, frighten, or creative negativity. We communicate to educate and help.

Anyway, my husb has hearing problems but I don't suppose you want to hear my sad story about that.

By Pearly4 On 2010.04.26 21:17
If I've contributed to another "discussion" like we ended up with on the dementia issue, I apologize. Having worked in medical offices and hospitals a great deal I tend to want to categorize some behaviors and disease processes by the approved definition of same. The truth is, it doesn't matter whether its true OCD behavior or an extension of a bad personality trait or not, its something that caregivers have to deal with and whether we call it "a personality disoder" or "OCD" or whatever, its still something a lot of us have met and experienced!

And I agree, it doesn't make them unacceptable, its just somthing else we can all understand and explore with each other, hopefully without casting blame or demeaning anyone else.

By karolinakitty On 2010.04.27 08:35
Mary i wasn't condeming your point of view or saying anything about him not being acceptable nor that we didn't want to hear your problems......
Mine too has hearing difficulties .....

My interjection was what my guy and i have discussed. His need to STILL feel needed. I wanted to pass it on.

By caregivermary On 2010.04.27 13:39
Actually, I was trying to point out after being on this journey for almost 20 yrs, the behavior to me is definitely complusive. Most of the time it doesn't bother me because I have accepted it as the disease. I agree it doesn't really matter what you call the behavior at this point.

I personnally picked up a tone here that said the PDers are needing to be needed and possibly the caregiver is mistakenly assuming OCD instead of the need. I didn't think anyone was comdeming my point of view but I wanted to be sure everyone knew I don't think people with OCD are unacceptable. I do believe some people are not ready to accept this may be part of the picture for PDers and I understand the reluntunce. We are all in a different place and it is difficult to clearly communicate here sometimes.

I have noticed when some of us talk about advanced Parkinson's issues there is an uneasiness. Be it dementia, incontinence, OCD, etc. I do feel there is an effort to change the conversation. I will continue to keep the conversation going because it does benefit me to know others are going through similar things and I have learned from the conversation.

My last comment about the hearing problem was a sarcastic one-sorry.

By caregivermary On 2010.04.27 14:53
Not to belabor the point...and I know you all have probably researched this already but.....this is to help answer the original question "what other OCD behaviors do PDers have?"

What is obsessive-compulsive disorder (OCD)?
Obsessive-compulsive disorder (OCD) is a type of mental illness that causes repeated unwanted thoughts. To get rid of the thoughts, a person does the same tasks over and over. For example, you may fear that everything you touch has germs on it. So to ease that fear, you wash your hands over and over again.

OCD is a chronic, or long-term, illness that can take over your life, hurt your relationships, and limit your ability to work or go to school.

What causes OCD?
Experts don't know the exact cause of obsessive-compulsive disorder. Research suggests that there may be a problem with the way one part of the brain sends information to another part. Not having enough of a brain chemical called serotonin may help cause the problem.

Some experts believe that a problem related to infections, such as strep throat or scarlet fever, can suddenly bring on the disorder or make its symptoms worse in some children.

What are the symptoms?
Symptoms of obsessive-compulsive disorder tend to come and go over time and range from mild to severe. Anxiety is the most common symptom. For example, you may have an overall sense that something terrible will happen if you don't do a certain task, such as check again and again to see whether the stove is on. If you fail to check, you may suddenly feel tense or anxious or have a nagging sense that you left something undone.

Symptoms of the disorder include:

¡öObsessions. These are unwanted thoughts, ideas, and impulses that you have again and again. They won't go away. They get in the way of your normal thoughts and cause anxiety or fear. The thoughts may be sexual or violent, or they may make you worry about illness or infection. Examples include:
¡öA fear of harm to yourself or a loved one.
¡öA driving need to do things perfectly or correctly.
¡öA fear of getting dirty or infected.
¡öCompulsions. These are behaviors that you repeat to try to control the obsessions. Some people have behaviors that are rigid and structured, while others have very complex behaviors that change. Examples include:
¡öWashing, or checking that something has been done.
¡öCounting, often while doing another compulsive action, such as hand-washing.
¡öRepeating things or always moving items to keep them in perfect order.
The obsessions or compulsions usually take up a lot of time¡ªmore than 1 hour a day. They greatly interfere with your normal routine at work or school, and they affect social activities and relationships.

Sometimes people may understand that their obsessions and compulsions are not real. But at other times they may not be sure, or they may believe strongly in their fears.

How is OCD diagnosed?
Your doctor can check for obsessive-compulsive disorder by asking about your symptoms and your past health. He or she may also do a physical exam. It¡¯s important to talk to your doctor if you think you have OCD. Many people with the disorder go without treatment because they are afraid or embarrassed to talk to a doctor

By karolinakitty On 2010.04.27 17:12
Thanx for the input Mary ... You having been there a long time ......

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