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By Lotsapies On 2010.05.08 12:00
Hi everyone
I am new to the site and new to Parkinson's. My husband was only diagnosed about a month ago and our world is upside down. We both are in shock, despair, trying to keep the pieces of our life as normal as possible. I have read all this before in some of the postings. This site has been a comfort many times in the late hours. My question is:how long does it take before the medicine starts having an effect and is it for a long period? Is there a build up of "good" days or just a lessening of the symptoms in general? What have you experienced? Yesterday was our first good day since this began but today is awful. On the positive side his tremors are less but he is not feeling well at all today and just went to bed. It just seems like after all the peace of yesterday-all is forgotten and in just 24 hours we are back to square one. How do you cope? Thank you for the site!

By shakydog On 2010.05.08 12:27
Hi lotsapies, and welcome. I've been dealing with parky for over a dozen years and there are good days and not so good days. The meds usually take a while to build up to a dosage that helps on a regular basis, some take longer than others. So just hang in there and life will get better. One thing to remember: parky is a LIFE sentance, there are lots worse things to hear from your doctor.

Enjoy the good times. Deal with each day as it comes. Contiinue living your lives as you wish. Don't loose sight of the joy of life. Don't let it smother your existance. Keep a good attitude. Come here and vent when you can't.

Don't let it win the battle

Shakydog

By LOHENGR1N On 2010.05.08 12:50
Lotsapies, Hi and welcome to the forum. What you're feeling, shock, despair is normal. It's a grieving process. Your question is hard to answer, you don't say what medicine or dosage your Husband in on. Also, everyone it seems reacts to medications a bit different, generally with Sinemet (Carbidopa/Levodopa) there is a three to five year window where it really works well. But this might vary some may get less others more. Sinemet is sometimes used to aid in diagnosis of Parkinson's Disease. The Neurologist will examine a person then give them a dose of Sinemet wait an hour or so and conduct the exam again. If the person responds to the Sinemet and symptoms are lessened then the Person has Parkinson's Disease. So if your question is about Sinemet and how long before it begins to take effect? The answer is about one hour, give or take. This said it might take a bit for the correct dosage to be found to give the greatest relief to your husband. The neurologist will have him back to see if the dosage has to be lowered or upped until that dosage is ok for the time being. Again welcome to the forum, there is a very knowledgeable and caring group of Caregivers/Partners and Patients here to help. Myself I'm a patient, diagnosed in 1986. Also please feel free to email me at LOHENGR1N@aol.com anytime. Take care, best of luck and hang in there.

By Lotsapies On 2010.05.08 13:34
Thank you, thank you for the responses. He is on senimet 3 x a day as well as Keppra 2x a day. He also was found to be deficient in Vitamin D and takes supplements for that as well. The problem is we haven't found a good nuerologist in our area (Northern California) and the VA is well- the VA. The VA Neuro actually said he had restless leg syndrome in the beginning-thats for another post, another day. In the meantime, it is a relief to discuss this with people that get it. Blessings.

By caregivermary On 2010.05.08 14:58
Not sure where you are in No. Cal. but Reno has a VA hosp and a neuro who is a movement disorder specialist. There is a Parkinson's Institute in Sunnyvale Ca that will help you too.

By Emma On 2010.05.08 17:20
Hi lotsapies! Welcome to the forum. We all know how you're feeling right now and it's normal. You've had a big shock and it will take a while to adjust and accept so hang in there. Being newly diagnosed there will probably be some tweaking of the medications until your neuro hits on the right dose and combination. Bear with it. My husband has been on sinemet for about 9 years. It seems like about every two years it has to be adjusted. I think that we are now approaching the end of the useful life of Sinemet for him. He's also on Requip but that has been cut way way back (just a small dose at night for restless leg). Like everything else with Parkinson's, the medication dosage and response is different for everyone.

I have found this site to be my best source of information about Parkinson's and also my best source of support. I feel like the people on here are my "best friends" in many ways and they are surely the people who understand the best. We will all be here for you through this journey. Stay with us.

By Lotsapies On 2010.05.08 20:26
Thank you for the heads up on the VA in Reno-I think they will end up sending us to Sacramento but will inquire about that. Again I am grateful for the hugs given here-I will probably be a pest but all your advice and resources will be very much appreciated.

By parkinit On 2010.05.09 18:30
Welcome, Lotsapies! I'm relatively new here, too, but I've found this forum to be a great site for information as well as to vent. Thanks to all for your support and encouragement.


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