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By mike1964 On 2010.05.25 15:37
Hi,my dad suffers from parkinsons.I try help me mam as ilive realy close by.I find me mams struggling.she seems to get easily stressed.Dad seems to be getting worse.Looking in to space,confused,thinking theres two women in is life.wandering round the house getting lost.muttering and saying strange things.slavering a lot dropping food.My mums not one for picking the phone up or ringing for advice or help.I dont no what sort of help is available or any benefits they may be entitled to.but any advice or help for me to assist them would be greatly appreciated.I Live in Hull England..ps dads got hearing difficulties,and attended the parkinson doctor today with mum,I unfortunately couldnt make it.Dr reckons he was no worse me an my mum couldnt believe it. We were both was hoping for a dosage increase to see if that would help in some way.

By Pearly4 On 2010.05.26 06:10
I'm afraid there is no magic bullet where Parkinson's is concerned. Its a confusing complicated disease that takes constant supervision and observation by caregivers in its advanced stages.

The symptoms of hallucinations ("seeing things that aren't there" and delusions ("wrongful beliefs") are common both in the advanced stages of Parkinson's as well as with over-medication. It would be hard to tell from what you've written what the problem might be. He might also be suffering from a urinary tract infection or some other illness and I would hope his physician tested for that.

As someone with a diagnosis of a life limiting illness, your father (possibly your mother) is eligible to discuss his care with a hospice. They can be of great help and possibly make referrals if your father is not currently eligible for their assistance. You might need to make the initial calls yourself or research on the web. You also might look for an Area Council on Aging -- they usually can make referrals to resources at low or no cost if necessary and make home visits to talk with your mother if necessary. Your father's physician is not legally able to speak with your about your father's health without his permission however you can write him a letter or make a phone call telling him of your family's confusion and difficulties in caretaking -- perhaps his office can make referrals for you.

I wish you luck - it can be a complicated task to care for a Parkinsons patient. I hope you can find someone whether it is a friend of the family, extended family, clergy or public agency to help you take charge and direct or assist your mother.

By susger8 On 2010.05.26 08:14
Mike, you might try to find a Parkinson's support group in your area. They might be able to help you find what resources are available. I know the medical system is much different in the UK than it is here in the US, so it's hard for me to make suggestions.

If it's possible, try to find a movement disorder specialist rather than a regular neurologist. A movement disorder specialist would be much more knowledgeable about the disease and the medications. Medications for PD are VERY hard to get right.

Good luck!

Sue

By Pearly4 On 2010.05.26 08:48
Oops! Missed your location -- I guess you'll have to edit for your location but some of the information may still apply.

By LOHENGR1N On 2010.05.26 16:37
Hi Mike, welcome to the forum. Mike write down what you see and if you can't make it to the doctors have your Mom bring it and discuss this with the doctor. Doctors see only bits and pieces of Us in visits and I've found after the initial visits to Doctor We patients exhibit best performance. Like going to the dentist, you know your tooth is killing you until you get to the waiting room like magic the pain abates? We can be acting pretty good at the office and get out to the car then turn into a mess. Another way to show the Doctor what's going on is to change the time of day for the next appointment. This sounds odd probably but it works. My Neurologist had my appointments at mid afternoon for some time, then I couldn't make the afternoon so We switched to morning. Well to make a long story short, instead of three months between appointments he had me coming once a month until he was sure it was the time of day that was making the difference which He proclaimed that first morning appointment as "My God what's happened to you!". Doctors look at notes observe and then note again. If We say but it seems like I'm having more trouble later in the day, if they don't see it they note it and that's about it. I can give you one hint about the drooling (slavering). It may help your Dad if you get those terrycloth wrist bands like tennis players wear. This way he can wipe his mouth without drawing attention a handkerchief or towel will bring plus He'll have a "sporty" look about Him. Take care, best of luck and hang in there.

By Heedee On 2010.05.26 17:43
My mom had problems with hallucinations. She saw people, especially little children. One day she asked me who was going to cook for all the people in the living room, but she and I were the only ones there. I didn't know how to respond to her hallucinations for fear of offending her if I told her there was no one there.
She told me that she always wanted to know if she was hallucinating. Now I tell her, and she seems to accept it. She has had fewer halllucinations in the past months, but just recently they seem to be increasing again. Also, I really like the hint about the tennis wrist bands for drooling.

By mike1964 On 2010.05.27 10:55
First of all thankyou for all the response.Think the wrist band regarding the slavering is a good idea!.One question id like to ask is my mum and dad were on hol in benidorm, before dad had parkinsons! He became realy ill and had to have a major bowel operation.I flew out to benidorm,and was realy shocked to see how me dad was so traumertised.after the op, He was actualy strapped to the bed,no english or hardly any was spoken.It was realy awful to see him strapped down.Dad never seemed right again after this dreadful experience, think alot of illusinations started fom here,as he kept thinking there was an old woman sat in the corner of the hospital room.I certainly dont think hes ever got over it!.Does a thing like this bring on parkinsons?.Also forget to mention took him to the drs couple of days ago to talk bout his parkinsons and how he was deteriating.The doctor has referd him to a memory assesor.Ive spoke to a friend who suggests this may be to see if he as alzhiemers also.What diff is alzhiemers to parkinsons? Kind regards Mike

By Emma On 2010.05.27 12:44
Hi Mike! Alzheimers is a form of dementia, Parkinson's is a movement disorder. It is possible to have both Parkinson's and Alzheimers or another form of dementia at the same time. Many people with Parkinson's have hallucinations and delusions, it can be caused by the medication or by the Parkinson's itself and does not necessarily mean that your dad has dementia. My husband has a lot of confusion too. A couple of days ago he thought our house was being invaded and that he had come in with an airplane to drive the invaders away. That would be an example of a delusion (believing something that's not true). He often sees people and animals in the house as well, many times he sees a man sitting on our sofa. Those are hallucinations and he seems to know that they are not real. He also has auditory hallucinations where he hears things that aren't there. These types of things are not uncommon with Parkinson's. Good luck to you and bless you for taking an interest and being supportive to your parents.

By mike1964 On 2010.05.27 13:40
Hi Emma,thankyou for the reply.After doing a bit of research on parkinsons i seem to think and so does me mam. That dad has vascular parkinsons all the symptoms point to that.Does any one no if madopar(50 mg once 3 times aday is the correct drug?.Emma. dad sees another woman on neumerous occasions,but that happend with being very confused straight after the holiday experience. Mike.

By LOHENGR1N On 2010.05.27 14:49
mike, it is not uncommon for something like an operation to cause the symptoms of Diseases like Parkinson's to manifest. The disease is there and has been progressing for a time and then anesthesia during the operation shows the underlying problems. With Parkinson's Disease anesthesia really can cause problems and unlike "normal" healthy people recovery is long and hard. Confusion, disorientation, delusions and delirium occur and can last for months. So in answer to your question does a thing like this bring on Parkinson's? Technically no, it can bring an underlying disease like Parkinson's to the surface. With Parkinson's Disease being progressive it would become noticeable anyway at some point but the anesthesia and the operation moved that time table up it would seem in your Dad's case. I can only try to imagine the scene you walked in on at the hospital! Not knowing about the Parkinson's or effects of anesthesia upon one with Parkinson's the hospital staff was caught off guard and ill equipped to handle the results. I'm glad You've got Him back home and under competent medical care now. Keep posting we're all here to help anyway we can. Take care, best of luck and hang in there.

By susger8 On 2010.05.28 07:39
Mike, many of us have observed that our PWP (person with Parkinson's) suffers a big setback after having general anesthesia. This combined with being in an unfamiliar environment can bring on behavior that appears psychotic. It quite frightened me to find my father completely disoriented the first time he broke some bones and had to be in a rehabilitation center for a couple of months. He actually tried to punch the aides, who were just trying to help him get back in bed. He thought they were trying to kill him. He did improve a lot after he returned to his home.

Sue


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