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Topic Making a difference Go to previous topic Go to next topic Go to higher level

By Lotsapies On 2010.06.14 23:49
I just want all of you to know your posts are helping our family get an edge in this battle. Today I traveled 250 miles with my husband to the nearest VA clinic that has an on site neurologist as well as a movement disorder specialist. (a term I learned here) I carried my notebook with my daily notes, medications, symptoms, and medical information as suggested in a previous post. When the doctor talked about other types of medications and increasing doses-we were prepared to ask about side effects and actually take part in the discussion for treatment. (By reading your experiences)I have to say this visit gave us a glimmer that life may get better (for now) and opened up the dialog between my hubby and myself. (Thanks Al for reminding us often we are in this together) I read all of you each day and value your input and experience. My husband reads you too. It helps.

By LOHENGR1N On 2010.06.15 01:11
Thanks a.k.a. Lotsofpies (wink), This is a nice post, it's nice to know We've made a positive difference here on the forum. We get caught up answering questions and trying to calm nervous, scared and puzzled People trying to make their way through this disease. I think I can say for all here, we're glad to be of help and thanks for letting us know we have been. Glad Your Dr's visit went well, keep up the good work and keep posting We need you and yours here to help us and others. Again thanks! Take care, best of luck and hang in there! Sincerely Al.

By Emma On 2010.06.15 06:02
Lotsapies, this really is a nice post. Thank you. I know that for me this forum has been the best thing that has happened since we've been dealing with Parkinson's. It gives me a place to vent, to cry, to be honest, to ask questions and to learn. I think that I am a better and more well informed caregiver because of the support, the empathy and the information that I get here. It feels like a big wonderful family and I'm happy to be part of it. I'm glad that you are part of it too. Hugs.

By karolinakitty On 2010.06.15 08:44
Great post lotsapies ... I have learned so much from these great people here too... they led me in directions i never thought to go and fight this battle with my head up....

By Reflection On 2010.06.15 09:36
Amen. Thank you, lotsapies, for expressing what I so often have felt, but not posted. This forum has saved my sanity, and helped me and my family enormously. I don't post much, but I read constantly, and I am so grateful to all those who honestly communicate what is in their minds and hearts. Thank you all.

By rmshea On 2010.06.16 15:32
I wanted to add my thanks for all the knowledge that's been available to me in helping the MIL. She is impressed with how much I 'know'..I am using the notebook idea now, just trying to get her to journal. Having a movement disorder specialist is essential; and I learned that here. In just a few days on fludrocortisone, her voice is stronger, she's moving ten days she starts her new dose of sinemet. She was taking sinemet when she felt like it; I didn't know that..I now have her on a schedule. This forum has been a godsend; now that we both are hopeful, it has changed our relationship and our times together are not the drudge they used to be. Thanks to all..

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