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Topic any suggestions for dizzyness Go to previous topic Go to next topic Go to higher level

By pamwww55 On 2010.09.30 10:36
My husband was just diagnosed February of this year. He started taking 2 medicines but they cause extreme dizzyness. My husband's specialist said to just continue on those medicines, as she doesn't want to swith to any other kind and he would just have to live with the dizzyness.Some days he can't even go to work as it is so bad and as you can guess it is paying heck with our finances when he is unable to work as he isn't paid for those days.
Can anybody tell me or suggest what will help with the dizzyness? He has had all the xrays and nothing is found to be causing this.
Thanks for any suggestions.

By karolinakitty On 2010.09.30 13:09
I'm no doctor, but my guy gets the dizzies also. He's on Requip, Aricept and Gabapentin and all three cause it, it's listed as one of the side effects. The only thing he has done is to avoid fast turns, sudden stops and paces himself very carefully. He has to slowly get up fron sitting, which isn't a real problem for him, but no sudden moves and he is very conscious of it. It kinda goes with his "drunk" like walk, staggers and swaggers.
The other issue may be his blood pressure. Pd plays havoc with it. Sometimes it's high and sometimes it's low. My guy doesn't take any meds for it because of the issues those drugs have in either raising it or lowering it too much. Next time you go to the docs ask them to do a sitting, then a standing blood pressure, this will show if he has that issue.
If work is an issue, and ya'll need the dough of course to survive, he can apply for temporary disability while he gets his meds straight. You still have to go through the same old process. It's kinda like when someone falls and hurts their back, they sometimes don't need it for the rest of their life just while they rehab.
It took my guy about a good year and a half to get straight with his meds. Although getting straight doesn't always mean forever, you sometimes get a break from the extremes.
Don't know your states disability process. Ours played havoc for us, but he did finally get it. I know it's hard to think about, but something that depending on his age might have to be a cobsideration.

By LOHENGR1N On 2010.09.30 19:03
pamwww55, Hi and welcome to the forum. I'm trying to get a handle on the dizziness? By extreme do you mean He staggers and loses his balance falling down? Or staggers into walls or door casings trying to get through them? Or He stands and gets woozy and has to sit back down. Is it a dizziness that makes him nauseous? If you can give Us an idea of how it affects him we might be able to come up with some suggestions that would relate to the dizziness he's having and help ease the situation. Again welcome to the forum, you've found a great place with many caring helpful people. Take care, best of luck and hang in there.

By pamwww55 On 2010.10.05 17:45
He just is constantly dizzy--he said his head just spins non stop, doesn't lose balance as long as he moves very slow. He says it gets worse when he stands but he has learned to count to 10 before he moves. He just says the spinning never goes away

By karolinakitty On 2010.10.06 08:29
It does sound like he goes through the same thing mu guy does. It has slowed down somewhat as he has got used to the meds. He can't work, not just for the dizzy's but for everything combined. You don't say how old he is, or what drugs he is on, but as my guy says "i just live with it" . For him a complication of both areas, meds and the PD.

By packerman On 2010.10.06 09:46
could it be vertigo or an inner ear infection?
i've had both and the dizziness and instability are quite disconcerting.

By LOHENGR1N On 2010.10.07 00:07
pamwww55, After ruling out vertigo or inner ear infection, if He hasn't or isn't able to adjust to the medication I'd recall His specialist and tell them it's interfering with his daily living! Be specific, at times it's hard enough to tie one's shoe without being dizzy (head spinning), Tell them if He has to hold on even to go to the toilet. Unfortunately there are some in the medical field that don't think side effects are bothersome or just take getting used to. Or think that a patient is malingering or feeling sorry for themselves because of the diagnosis. THEY don't have to get used to it! Many here can tell you horror stories of run ins with Doctors like these, myself included.

Stick with us here on the forum, we'll try to help get you through this. There is a wealth of knowledge and experience here. While there currently is no cure for Parkinson's Disease the Doctors number one job is to make the life of the patient the best quality that can be achieved and NOT to tell them to get used to it. Their oath says do no harm, not do whatever and let them get used to the results or live with the results. It is so frustrating to hear about these comments. After 25 years in this battle this callousness from a Doctor makes one want to reach up and pull one's hair out.....but.....after 25 years I don't have that much hair left up there to pull out. I would place another call and insist you are listened to, that the medicine is either lowered to a smaller dose or a different medicine is substituted.

We've all been there and are pulling for you and yours. Please keep us posted and let us know how you're making out. If this doesn't work we'll keep trying till one of us comes up with something that does. Take care, best of luck and hang in there.

By pamwww55 On 2011.01.10 15:18
My guy is still having the same problems--He says it is a fog that he is in all the time. He is 59 and is on Stalevo 75 Mg three times a day and on Aziltec 1mg once a day. He is in pain in all his joints and has the tremors on his left side. Walks really slow. He has inconsistancy and at times slurs his words.
I feel really guilty as I get so mad at him because of his moodiness and his not helping me with anything at all anymore. He is not going to work but he sits on the couch watching TV and then asks me the minute I get home from working a 10 hour day what is for supper.
What really bothers me the most is I guess I just miss my best friend and my husband. He is not the same person anymore. We used to talk for hours and now we don't talk or do anything anymore. I have to go to all family get togethers or business functions all alone like a single person. I know he is depressed but I am getting depressed also. We have been together for 40 years and I really miss him.

By hansbl2 On 2011.01.13 21:08
I also had dizziness with nausea. My dr put me on transderm scop patches. One patch behind the ear. I stopped getting dizzy and nauseated. You might want to give it a try.

By oshroshr On 2011.01.14 23:06
My husband also has the dizzies but it has gotten worse lately. When I read the other posts, it makes me feel better as I was starting to think some other thing is going on.
He also has started leaning to the left a lot and when sitting has to have something to support his lean to the left. Since he has been on Mirapex and gabapentin for over a year, can the dizziness suddenly start when it was not there before? That seems to be what has happened.
I try to look up symtoms but find far more help from this forum and all of the people who understand

By Emma On 2011.01.15 04:21
pamwww55, I'm a little late getting to your post but I have to say that I agree with Lohengren, you need to call his doctor back and insist that this get resolved. It is causing problems with his ability to function in his everyday life and that is not acceptable. Reading your story made me so angry about the cavalier attitude so many doctors have. It also made me very grateful for our neuro. Everytime my husband tells him about a new or worsening symptom the very first thing he asks is "is it interfering with your quality of life?" Exactly the phrase that Lohengrin used in his reply to you. If the answer is yes he makes changes and continues to do so until the problem is fixed or at least lessened. You will find on your journey with this disease that you will have to be an advocate for your husband and you will have to grow a new and stronger backbone to deal with the medical profession.

As far as the sadness and frustration you are feeling, we've all been there. Still are. It is very hard to see the person you have known and loved for so many years change so much. You are relatively new to this disease and you are grieving the loss of the partner who is now becoming your patient. It's a rough road with many bumps along the way. If it wasn't there would be no need for a forum like this. We all need help and support to get through this gigantic change in our lives. We are here for you.

By hubb On 2011.01.15 11:27
To my friend Emma - you said the very words I needed ... we are having a Celebration of Life today for my husband and I was trying to think what to say to all our friends and relatives when they keep telling me how strong I am and what great care I took of him - I may appear strong on the outside but I am a quivering mess on the inside - they do change from being partners to patients; however, in going over old pictures with our sons who are presenting a power point program and of hearing my sons' remarks they are going to make, I feel almost at ease at this moment looking at him as he used to be - healthy, smiling and full of life - that's how I hope to remember him - he actually left us a while ago and died a week ago - there is a difference. Now that I am starting on this side of PD, I can feel okay one minute and then someone says something nice and that's all it takes for the tears to flow - I know it will get better with time but I have been grieving silently for many years now. Best of luck to all of you still going through this - each day presents new problems in this journey and it takes a heck of a caretaker to keep on going...Betty

By Emma On 2011.01.15 12:26
Dear Dear Betty,

I will be thinking of you today. I'm glad if I was able to help you in some small way but I feel like you are so wise and eloquent that you need no help. Your words are meaningful to me. Since your husband's passing I have been thinking of our own journey with Parkinson's and the end that will come all too soon I'm sure. I too want to remember my husband as he was but I know that Parkinson's is now part of our history and when people speak of him, if they do, the last words are, and will be, something like "it's so sad that he has Parkinson's". I want people to know that he is more than a disease, that he had 59 years of a good and active life before Parkinson's became part of it and started stealing it away. We all need to remember that, I know how you feel. Bless you my friend.


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