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Topic tic bite and Parkinson's Go to previous topic Go to next topic Go to higher level

By caregivermary On 2010.10.24 18:31
Someone mentioned this several weeks ago but I can't locate the post. I found out my husb was bitten when he was 14 yrs old. That would of been 1948. The person posting found something about tic bites and Parkinson's disease. What was it?

By lurkingforacure On 2010.10.24 19:11
I can't remember exactly but tick bites transmit Lyme disease which has several symptoms which are very similar to PD. I have a friend at my son's school with Lyme and it's awful. The Lyme bacteria can lie dormant for years and then they all attack at the same time, they seem almost intelligent with a strategy of attacking their host when they are exhausted and weak. It is a very weird but for them, effective as they overwhelm the immune system.

There are special tests for Lyme and you have to get the right one for you. My friend says even once she gets her Lyme bacteria under control with all the IV meds she has to take, it can still flare up years later, as she has seen with someone she knows. I don't know if this answers your question but sometimes people who have been told they have PD or suspect they do find out they actually have Lyme.

By Emma On 2010.10.25 04:46
Hi caregivermary, I posted on 10/15/10 about the possible connection between Parkinson's and Lyme Disease. The post is titled "Parkinson's & Lyme Disease?". Lyme is awful and getting the right test can be difficult. My daughter had a negative result when she had the standard test. Later she found a Lyme Disease specialist and had several other tests which showed she does have Lyme. Anyway, scroll down and look for my original post. The possible connection between Lyme and neurological diseases is interesting.

By lurkingforacure On 2010.10.25 12:02
The symptoms my friend with Lyme has which are similar to PD:

1. memory issues, or cognitive issues, she says she has to read instructions several times before she can get things in the right order, this is hard for her to help her kids with homework, etc. (common in PD, yes? how many here have posted about their loved one no longer being able to do things they once did all the time, handle the remote, operate this tool or that, etc.)

2. pain (boy, can we ever relate to this) she can hardly stand up most days and has to use her walker

3. fatigue (again, a huge, if not THE biggest issue with us for PD besides the pain)-my friend naps throughout the day

Those are the three biggies she has shared with me and what is interesting is that she said she felt crappy for about two years before anyone believed anything was actually wrong. One doc actually told her it was all in her head and gave her a script for anti-depressants. This is also a very common experience with PWP, and the younger the person is, the less likely they are to be dx'd with PD simply because most docs still think it's an "old person's disease".

I also find the symptom overlap curious and wish someone would look into the link. Stress universally exacerbates PD symptoms in everyone I know but no one will research that either.

By caregivermary On 2010.10.25 13:26
Obviously, I didn't look closely enough at the posts. I actually used the search option and the response did not include the one on 10/15. Thanks for pointed it out.

This is all very interesting to me and I appreciate all the feedback. I will be asking some questions of the Dr. re this.

By susger8 On 2010.10.25 14:26
You know what else is a symptom of both PD and Lyme disease? Dizziness/fainting. Some people with Lyme get an inflammation of the heart that can interrupt the electrical signal.

Sue

By MonaL On 2010.10.30 18:55
The best thing would be to find a doctor that specializes in tick diseases - they will know which tests to run and how best to read them. False negatives are common, and tick diseases are greatly misunderstood and under-estimated. Most regular docts or specialists probably don't have enough experience with the elusive cases, only the obvious ones.

In the absence of that, I would pick up some doxycycline and try a low dose and watch for a reaction. That, more than anything, may be diagnostic. If it's deep enough in the CNS though, oral antibiotics may not touch it, which is why you would want a lyme specialist.

This is pretty interesting, though I don't know if he has any info on PD:
http://lymemd.blogspot.com/


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