As has been said many times Parkinson's Disease does effect every function of our bodies including autonomic one's like breathing. If our lungs aren't receiving correct signals they can't expand and contract "normally", if signals are garbled our diaphragm won't function correctly. Unfortunately many Medical professionals out there don't recognize this! There are many that don't recognize another pet peeve some of Us have pain. There is no pain with Parkinson's, but that's fodder for a different rant. |
With Parkinson's Disease it becomes a classic not seeing the forest for the trees! Parkinson's Disease causes Us problems with our thought process, our breathing, our blood pressure, our heart rate, our balance, joints, muscles our whole body. This is where the medical community is severely lacking!
Yes there has sprung up a community of Neurologists who choose to treat and specialize in "movement disorders". However there are to my knowledge no specialists in effects of diseases of movement as a whole. Meaning not only how they interfere with movement but also the whole body. So We patients are stuck dragging or being dragged by our caregivers from one doctor to another, specialists in urology, cardiology, pulmonary, joint disease, OCD, psychologists and or psychiatrists, the whole spectrum of these studies.
In a sensible world, in a enlightened society as we claim to live in this would be the product of the evolution of "The science of Medicine". But then what does our evolved art of medicine do? We're still in the stage of looking at humors to diagnose ailments like they did 1000's of years ago. Don't believe me? Don't feel? Go to the doctors and what do they want you to do? Pee in a cup and draw blood! Same as 1000's of years ago. I've often wondered about this I guess they can LOOK closer at it now?
I don't know the answers I wish I did. One thing I do know is frustration, the frustration of living with this disease. The frustration and bewilderment expressed daily by caregiver and patient alike. Not knowing what to expect from the disease or medication. Not being listened to. What makes some Doctors think they know all about this? Is it because they've studied it? We live it, We live with side effects the Doctors don't.
I guess this post came from watching Awakenings yesterday on TV. One scene really struck me this time. The scene was when the patients were going for an outing. One gent was examining the bus tire. A nurse bent over, put her hand on his shoulder and said that's a tire Mr so-n-so, as he stood he said I know it's a tire, I'm not an idiot! She just patted his shoulder as if he was an idiot. Too anyone listening, to the "professionals" out there, We're not idiots! We have still a lot more to teach you! More than at times it seems you're willing to learn! As I said I don't know all the answers, I do know things need fixing and until the medical field as a whole starts listening to it's patients, it will continue to be severely lacking in the ability to treat and cure these same patients.
I'm not saying P.D. is responsible for everything happening just it must be considered as being among the causes of what's going on. Take care, best of luck and hang in there.