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By LotsaBob On 2011.11.11 18:36
I read an article about PD vs PSP. Question: How many PD patients on this forum could have been missed diagnosed with PD when infact they may have PSP? I'm just asking. Is it possible?

By LOHENGR1N On 2011.11.11 19:04
LotsaBob, This is from the Progressive Supranuclear Palsy Fact Sheet: National Institute of Neurological Disorders and Stroke. " PSP is often misdiagnosed because some of its symptoms are very much like those of Parkinson's disease, Alzheimer's disease, and more rare neurodegenerative disorders, such as Creutzfeldt-Jakob disease. In fact, PSP is most often misdiagnosed as Parkinson's disease early in the course of the illness. Memory problems and personality changes may also lead a physician to mistake PSP for depression, or even attribute symptoms to some form of dementia. The key to diagnosing PSP is identifying early gait instability and difficulty moving the eyes, the hallmark of the disease, as well as ruling out other similar disorders, some of which are treatable. "

So yes it's possible, however as the diseases progress the differences become more and more distinguishable and it's easier to ferret out a correct diagnosis. This is another reason to get second opinions from movement disorder specialists or a neurological referral center. It all comes down to finding a Doctor who is competent in the field of Neurology and one whom you trust. Tkae care, best of luck and hang in there.

By karolinakitty On 2011.11.12 15:29
Lotsa Bob....When we originally went to see our Movement doc he was very open about ANY of the plus diseases getting misdiagnosed. He said that sometimes it is hard to tell exactly what is up due to many factors. While they all have different symptoms but yet have the same parkinsonism, it varies between the history of the patient plus what is the most "annoying" of the symptoms.....

As we went down our list of things...that's when he did some, what we thought at the time, off the wall weird things....wanted him to walk a straight line, checked his eyes, following a light...in fact my guy joked and asked if he was taking a sobriety test.

From what he told us...it is so hard to get the right diagnosis..my guy crossed soooooo many lines that just for insurance sake he gave him LBD.....Now whether that is right or wrong in some aspects it makes no difference.....I say that because even folks with straight up PD can have personality changes due to meds....as well as behavioral changes unlike those of FLD(frontal lobe) which doesn't even make it in the PD world....

The progression of these diseases varies as well. I have read several different charts and graphs and studies until i just gave up because some say the progression is faster on PSP then on MSA, but I spoke with several MSA folks, but only 1 PSP guy and they seemed equal in all their progressions...whose to say.....

My guy has been 3+ years into this LBD, the original dx gave him 3-5 years...however....the dementia he has is nowhere near what he had at the onset...so...what do we do now and where do we go from here...our PCP gave us the conclusion that the BP and Sugar highs we had were due to the fact that the PD wasn't treated correctly..now that he is on the Sinemet and taking less requip...all those issues have gone away...

Sorry to ramble...what i guess I am trying to say is even our LBD dx was probably incorrect, but, the disease of whatever is still there...symptoms are being treated...but does the name really matter...PSP, MSA, LBD, CBGD or PD....alphabet soup and crackers!!!!!


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