For those who care for someone with Parkinson's disease
[Home] [Forum] [Help] [Search] [Register] [Login] [Donate]
You are not logged in

Topic Do we have to become pariahs? Go to previous topic Go to next topic Go to higher level

By parkinit On 2012.05.11 20:31
This too shall pass, but I have to voice my current thoughts to ease the pain and strain of the last few days.

You see, I had a really cool trip planned to visit my daughter this weekend. She was excited, too. She had taken off two of her precious vacation days to extend the weekend activities. We had made lots of plans, found wonderful activities to do, and it was just going to be a nice, fun-filled, relaxing weekend with no thoughts of my PWP as I enjoyed my daughter's company while he was in the good hands of 5 different, competent caregivers. Oh, yes, and I was going with his blessing.

Then yesterday happened. Something that occurs about every 2-5 months. Yep, you guessed it, he fell. Several broken bones, an overnight stay at the hospital and suddenly, I have no weekend Mother's Day plans. I calmly cancelled hotel reservations and other appointments made for during the trip. I called my daughter, who was very sad, but thought it was the right thing to do. I stayed the night with my PWP in the hospital, brought him home, continued to feed, dress, bathe, groom him, and brought him home. Then, I sneaked off upstairs and had myself a good "pity party session." I cried for me, I cried for my daughter. This has happened before, where I make plans, and they are quickly dashed away by an incident.

I detect more and more people simply give up inviting, asking, including family members because we can't always give a definitive answer, we disappoint, and we let down. We become pariahs, we lose family and friends. We become loners. Am I the only one who feels this way?

This, too, shall pass, but I just need to work this out in print, wallow in it for a bit, dust myself off and continue on this horrid, lonely journey.

By karolinakitty On 2012.05.11 22:21
Sorry to hear that your plans were ruined...
My son recently got married and I was so stressed worrying about whether I would make it or was a 12 hour drive, normally, so almost 14 for us....I was so worried whether something would happen... I didn't want to miss the wedding...but we made pity party came when I felt like such an outcast in my boys lives... my youngest and middle one were so "into" her family and I just felt like way out there somewhere.... Truthfully...I don't even want mother's day to come....being so far away.....them being all together all the just made me get a different perspective on life is here... I accept it ...and now have to just move on.....

Again sorry your plans were put to an end.....I do feel your pain....

By phoenix On 2012.05.11 22:29
No, you are not alone. It's so hard to make plans, and I feel that no one understands why we can't go out to dinner, etc. I'm retiring next month, mainly to look after my PWP. That's tough enough, but I can't figure out how I can go to my own retirement dinner (I'm a teacher and the school board has a lovely evening every June for all the year's retirees). It seems so trivial next to non stop tremors and cognitive decline and all the other difficulties my husband deals with - and yet, is important to me. This is such a horrid journey. Thanks for listening

© · Published by jAess Media · Privacy Policy & Terms of Use
Sponsorship Assistance for this website and Forum has been provided by
by people like you