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Topic pain in legs Go to previous topic Go to next topic Go to higher level

By LotsaBob On 2012.09.13 13:22
Hi All,

I was in Wichita, Ks, yesterday at the VA Hospital and a NP told me there is no pain in leggs associated with PD. She said it must be something else. Am I missing something here or am I going nuts.

By LOHENGR1N On 2012.09.13 15:52
Bob, You're not the one who's nuts! There is pain with Parkinson's and to rule out leg pain is simply nuts! Saddly some Doctors still do not recognize or won't recognize pain with parkinson's! Take care, best of luck and hang in there!

By jaxrock On 2012.09.13 21:06
My husband had such horrible pains in his legs, knees.......and ankles.........the doctors all said, PD doesn't cause, they tried pain meds, which didn't work, an MRI which showed nothing.........they guessed, arthritis, and gave him cortisone injections which did nothing, they guessed knee injury, they guessed torn miniscus..........No, it was none of the above.

In short, the pains subsided after about a month.....and no one knew what was causing it.

I'm no doctor, but my guess was the nerves from his PD causing such fire-hot pains

I won't be surprised if the pains come back..........and I do think it's PD related...

We did decide, tho, when and if if happens again, we are NOT running from doctor to doctor to be told it's not PD-related......That was an exhausting month, especially for my husband......

By lurkingforacure On 2012.09.14 10:28
BS! I can tell you for a fact that pain is a HUGE part of PD and not just in the legs. I don't mean to disrespect the person you visited, but it sounds like they are not an MDS or really have a clue how PD affects the body. Most MDS now readily acknowledge pain is part and parcel of PD, as they should. Given what is going on in the brain of a PWP, how could pain NOT be part of the disease? Sheesh.

By LotsaBob On 2012.09.15 10:53
I do know that my legs hurt so much Sally literally has had to almost drag me to bed. I do try to use my walker sometimes when they hurt but I can't stand up so she pushes me while I am hanging on to the walkar and my knee's and feet are dragging on the floor. This happens when going to bed since my wheel chair won't fit through the doorway.

By Trusting On 2012.09.16 13:49
My husband is treated at the VA too and leg pain was one of his first more severe symptoms. He hardly has any tremors but is in contant pain. They give him tylenol with codein when he needs it (he tries not to take it much). He complained with pain in his neck, his arms and his legs. Sometimes his back hurts so much he can hardly move. When he sees the nuerologist at the VA one of the questions they always ask is about his pain levels. One of my biggest fears is that my husband will have a pain unrelated to PD and we won't take him to a doctor to be checked out b/c we will think it's just the PD.

Does your VA hospital have a nuerologist on site? The St. Louis VA has been wonderful and really take their time to help us. I wish you the best.

By lilflower On 2012.09.23 20:30
Have him tested for neuropathy. My husband has PD and severe leg pain. His neuro. did tests and found he has severe neuropathy, he also has edema, he also has bad knees and just had bilateral knee replacement. He was in a wheelchair for over a year and since the knee replacement when he has energy he can walk with a walker. It's been ten days since his surgery he is doing well considering his Parkinsons. It is wonderful to see him walk again even if it is slow and with assistance. We have learned to take things one day at a time. Stressing over things doesn't help it only makes him upset and worsens his symptoms and it makes my sugar go up. We have been married over 30 years and we have been husband and wife, lovers, best friends, patient and caregiver. We have been retired as we call it since 2003 and living our lives the best we can, taking the good days with the bad. We have learned to cope and pray and do our best.

By mylove On 2012.10.30 22:46
I'm resurrecting this thread because I'm curious to know how they tested for neuropathy and how it's treated. What kind of symptoms was your husband having other than the leg pain?

By LOHENGR1N On 2012.10.31 00:16
ML, My Neurologist tested for neuropathy He placed a electrode (pad with wires to nerve convection machine?) then touched my hip with another electrode (like in school making frogs legs jump) The neuropathy diagnosis opened up a couple different medicines for pain which worked for a short time at taking the edge off the pain but not suppressing it altogether. As these drugs could only be prescribed for neuropathy.

My leg pain that lead to the tests and diagnosis? You know those medical books you can buy for your home? Those that have the human body with the transparent pages with muscles and organs then skeleton? The one with the muscles showing the thigh? where it has the felt like someone was using vice grips to lock on each individual muscle and peel it from the others (a searing intense pain, one a scale of 1 to 10 I'd rate it a 37) I know not something to think about just before bed but you asked and you're tough we know that. Ain't no sissies around P.D.

By gap2010 On 2012.11.02 21:59
My husband has horrible pain in his legs and feet and it's because of the PD. that I am sure of. The one thing that has seemed to help dramatically is when his neurologist put him on 4 doses a day of neurotin (sp?). It has made all the difference. don't know if this will help anyone else, but it helped him.

By LotsaBob On 2012.11.03 05:03
trusting: I now go to the VA hospital in Wichita, Ks. Yes they do have a neuro on staff but I do not know yet if they have a "Movement Disorder Specialist" or not. I have an appointment with the neuro coming up and I will surely ask about the movement disorder specialist.

By olpilot On 2012.11.11 03:32
Something that can go along with PD is Dystonia, which is cramping of the leg muscles and is treated with Amantadine. Check with your doc regarding this. Can be very painful!

By LotsaBob On 2012.11.11 15:21
As far as the pain in the legs go. I have asked the neuro's if it could be neuropathy due to the PD. They have all said NO. They say it is from my type two diebetes. Incidently, I do take Amantadine which was prescribed by my civillian Neuro.

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