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Topic Paranoia and Delusions Go to previous topic Go to next topic Go to higher level

By akearns On 2012.12.03 05:31
Hi. I am new to this so apologies if this has been asked before. My mum has PD and for the past 6 months or so has been quite paranoid about my sister who is her main caregiver. She was blaming her (but not to her face) for things disappearing and being moved around. For the past 4 weeks or so things have gone very bad and she is accusing her of stealing all her money, taking the keys out of doors to keep her locked in (Mum does this herself) and leaving her with nothing. She gets quite confused sometimes, asking to be brought home while sitting in her sitting room. This is proving very stressful for the whole family but particularly for my sister and her husband who look after her so well. Does anyone have any suggestions as to what we can do please?

By LOHENGR1N On 2012.12.03 08:34
akeams, Hi and welcome to the forum. If this has come on out of the blue 6 months ago and is getting worse first thought is medication. You don't mention what She is taking but it sounds like dose adjustment might be needed or even a different medication. (have you brought this to Her Neurologists attention) A little more information would help sort this out for You and yours. You've found a great site here with many caring people who will do their best to make sense out of this journey for you and yours. Again welcome! take care, best of luck and hang in there!

By Pearly4 On 2012.12.03 15:21
Once medication is ruled in or out, you might be left with learning to live with it as was my case. My mother had all the same accusations, even calling the police at times to report that her medication was being withheld (it wasn't) or she was being restrained against her well (she wasn't). We found out quite quickly that while these accusations make you feel odd and you might feel that the person being blamed is being "stared at" or thought badly of -- its not true. Most people and the world at large quite quickly figure out that there's a problem and are quite kind and helpful.

Harmless delusions while frightening to you or your family are just as frightening to the PWP though you'll find it difficult to reassure them and sometimes just need to play along. If there are bugs everywhere, help chase them away (we used a lint tape roller to "catch" them); if she doesn't recognize someone, simeply explain who you are and go on. You'll find helpful suggestions on Alzheimer's sites or by speaking with other specialists, for instance, my mother's day care providers, in dealing wtih specific delusions.

Must add - near the end, my mother was placed on Alzheimer's treatment drugs which did not effect her Parkinson's at all, and improved to the point where we began to consider assisted living situations. She was able to write a coherent letter, use the telephone, etc. We also we able to get her some outpatient in-the-home mental health visits, with professionals that helped her greatly.

By karolinakitty On 2012.12.10 13:09
Haven't been on for awhile but saw this post....

You necessarily don't have to live with this anymore...

dk had a post earlier on a drug trial her husband went through and we have heard of others in other trials with the same results...paranoia, hallucinations and delusions have faded....
here is a link to that new drug:

http://www.acadia-pharm.com/pipeline/pimavanserin.htm

It is quite new so your docs may not be totally aware of it yet.....I have a friend printing it out and taking it in to hers....

By LOHENGR1N On 2012.12.10 15:27
KK, While I read your link I'd advise caution. This is a pharmaceutical companies site. They hold exclusive rights worldwide to the drug so it is in their best interest to proclaim a wonder drug. That said according to the site this is in phase 3 or still in testing and not at present available to the public at large. Bringing it to your doctors attention won't do any good unless you are trying to enroll in the testing and then it might only help in considering one for the testing of this drug.

By karolinakitty On 2012.12.10 15:49
Yes Al... that is the pharmasuetical link.... I thought it would explain more for side effects and such.....

But dk as well as many others have told me how great the reposnse was to the trial... the trials were done at NIH, Duke. and several other hospitals across the country..

The trials are over and it has been given FDA approval...it is on the market ....

I'll see if I can find a better link

By parkinit On 2012.12.10 19:55
This sounds promising. My spouse just mentioned that "someone" (looking indulgently at me) had placed all his tools on his office desk (he had done this). Also, a few years ago he ran out to the road and told the neighbors I had refused to take him to the doctor. This was not true, of course. We have had these issues off and on, but he denies that he has problems, so I may have to make an appointment to see his doctor without him in order to get it prescribed. However, I've never done that as I've tried to be open about everything as much as possible with him, but when they don't see the issues, what do you do?

Does anyone else have this problem - where spouse denies any problems?

By chroop67 On 2012.12.11 21:40
My mom, who has been in a nursing home for 2 years, constantly tells me how her Parkinson's is hardly noticeable and she really doesn't require much help. She lives there because of her high level of need, from showering, taking meds, mobility and for her safety. I think that the lack of awareness is definitely part of the disease, it really can be quite frustrating!!!!


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