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Topic Passing out and going limp Go to previous topic Go to next topic Go to higher level

By LotsaBob On 2013.04.14 21:45
I have had a series of passing out and going limp which has scared my wife half to death. Is this normal with PD? I also have a lot of headaches and dizziness. I also have been having more panic attacks lately. All this has come on rather recently. Am I due for a medication adjustment? I won't see my neuro until May 22nd.

By LOHENGR1N On 2013.04.14 23:40
Bob, Nothing it seems is normal with PD. Have lotsapies note your problems and how often then discuss them with the Doc. With these things happening it is only normal to be having more panic attacks! It's gotta be scaring the heck out of both of you! Hope you get this figured out soon my friend! Try calling your Neuro maybe they can fit you in before your next scheduled appointment? Al

By McCall On 2013.04.15 13:28
I agree about seeing if you can get apt. moved up. also some of those things sound a bit like some of the Parkinson's plus symptoms for be sure to give a complete account to your Neuro who I hope is a MDS, if not you might wish to find one and see them.
Good luck and hope you feel better.

By LotsaBob On 2013.04.15 14:02
I have probably asked this before. What is the difference between Paskinson's Diease and Parkinson's Plus.

By seawench On 2013.04.15 19:56
My husband has a Parkinson's plus disease. Usually it means a neurological movement disorder that has Parkinson's symptoms but may in fact not be Parkinson's at all. My husband has MSA - Multiple Systems Atrophy. the progression is very quick and the prognosis is about 9-12 yrs. Unlike Parkinson's they really don't know what is wrong (ie: loss of dopamine) and allthough they get some help from Parkinson's drugs the results are often nominal.
MSA usually starts with Urine retention and ED. Low BP or Postural Orthostatic Hypotension is also a classic marker for MSA.

Seawench

By McCall On 2013.04.16 12:19
In addition to MSA there is also PSP Progressive Supranuclear Palsey and Cortico basal degeneration.
They all have symptoms similiar to PD but also have other symptoms, with PSP for instance the eye movement is affected can't move eyes up and down and sometimes side to side, also breathing, swallowing, falling backward loss of balance, different cognitive function loss etc.

By LotsaBob On 2013.04.16 13:41
The thing is, is that I have all the classic symptons of PD and have been diagnosed with PD three years ago by the VA. Could it be that these new symptons are the cause of the agent orange that has dioxin in it. Does anybody really know what that affect will cause.

By stillunsure On 2013.04.16 14:48
My husband was first diagnosed with MSA "tentatively", but the new movement specialist can't be sure. Increase in meds don't seem to quiet the tremor too much, which is only on one side for now. He is not incontinent, but because of a pre-existing enlarged prostate condition, when he has the urge, he HAS TO GO! Has had a couple of accidents, but now wears something. I do worry though because he's been getting dizzy spells more often, which has led to fainting in the past...ergo, the MSA diagnosis. His BP is very low upon standing (90/60), but is on 2 different BP meds because of past surges before PD. I think he's taking too many BP meds, but don't know who to call and I'm afraid to take him off.

Quandry that I would love answered: who should I call about the BP meds and dizziness?

By blue2 On 2013.04.16 14:59
Bob,
My husband has PD (not MSA or Lewy Body or other). He has had occasional fainting episodes aka syncope over the past year -the most recent just last Friday.
His neurologist explains that as PD affects the autonomic nervous system which regulates many internal functions, including blood pressure, it is not uncommon or unexpected that PWPs have blood pressure drops and fainting.
I tell you this in hope of allaying some of your fears. Nevertheless, your symptoms, esp. severe headaches should be checked out. Perhaps your dr. can respond to a phone call
before you next appt?

By LOHENGR1N On 2013.04.16 15:23
Stillunsure, For your blood pressure questions I'd discuss it with the Doctor who prescribed the blood pressure medicine. Our pressure fluctuates throughout the day and with the dosing of our anti-Parkinson's medicine. By that I mean if our medicine is working well our BP should be nearly "normal" but if the med's are wearing off or not quite working yet our pressure can be effected. If You can't take His pressure at home call the Doctor and ask if He can stop by to have it checked? Then stop in first thing in the morning, again in a couple of hours. If the Doctor doesn't want to have it done in a day set it up throughout the week, morning and afternoon at different times. (maybe the Druggist can do it) That way you'll have a record to view with His doctor as to how it dips and rises during the course of a day. Your Doctor then has a better idea of how to get it under control. It is easier then to make a decision if He's taking too much or if timing should be changed. I hope this helps.

I feel I should also suggest here to those reading this if You are going to Physical Therapy also to mix up appointment time. Sometimes going on "good" (when med's are working) gives a false picture to the therapist of how You're really doing. If they see Us only in on time they can't see how the disease effects Us when med's aren't working and we are struggling if they see us in both modes then it can help them tailor a routine to aid us when the medicine isn't working and our movements are hampered unlike appointments when med's are working and we can do the PT. Take care, best of luck and hang in there

By LotsaBob On 2013.04.16 19:48
blue2, I have syncope too. I have a pacer also but no defibulator. Maybe when I go to my cardiologist he will put one in.


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