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Topic Where are we?? Go to previous topic Go to next topic Go to higher level

By carman96 On 2013.10.07 19:22
Almost every day in the afternoon, if we are at home, my husband thinks we need to start packing to "go home". I ask him to look around and tell me where we are. Usually he snaps out of it and realizes we are at home. Today he was going to put his scooter in the car to go home. Other times he has started to put magazines in boxes because he thinks we are packing. One time he said "we could load up the box trailer" like maybe he thought we were moving.
Mostly he knows where he is but he gets confused in the afternoon. I don't know if it is his medications wearing off or what. Usually it is before his 4 p.m. sinemet and mirapex dose.
It is usually ok but sometimes he gets upset and that makes it much more difficult.
Has anyone else had a similar experience?

By Threadhead On 2013.10.08 07:34

By carman96 On 2013.10.08 08:53
Threadhead, thanks for the reply. Is he okay now on just the sinemet? My husband did seem to need something more when he was just on the sinemet, for movement anyway. Then his last Neuro put him on the mirapex, then his new one put him on stelevo, which is Levodopa/carbidopa with Enta, whatever that is.
He was diagnosed with dementia before he was on mirapex. How did you get the neurologist to listen? She seems to think the dosage is low. 3 mg a day of the mirapex.
But when he doesn't get his meds on time he has a hard time moving. He doesn't have tremors really, just the stiffness and slowness.
It seems to me that the medication is a real guessing game.

By Threadhead On 2013.10.08 09:17

By carman96 On 2013.10.08 20:42
Thanks for telling me your experience. That is a long time to be dealing with this. I really don't know how to tell if he is over medicated or not. We will see the neurologist on Thursday. I will be questioning her for sure. She is a movement disorder specialist at UC Davis, so she should know what she is doing. It still sounds like a guessing game though.

By parkinit On 2013.10.13 21:56
Carman -

Theadhead touched on sundowning, which could also be a possibility worth exploring.

It is good the doctors will talk to some of the spouses here. My husband would never admit to having hallucinations and has had some severe ones. When doctors don't ask spouses, they are missing the full picture.

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