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By makrivah On 2015.02.23 09:34
I watched this three minute you tube video on Alzheimer's:

I've been told that PD's dementia is different from Alzheimer's Disease. This video makes me wonder just how different they are. For those of you who have suffered through this tragedy, can you help me understand?

By Witsend On 2015.02.24 05:08
Hi makrivah,

I recently asked the attending psychiatrist at my husband's care center this exact question. I asked him because I can't see any appreciable difference between my husband and the Alzheimer's residents. The way he explained it is that Parkinson's Disease Dementia tends to start with personality changes, hallucinations, or delusions, and the memory loss comes later. In Alzheimer's the memory loss comes first, and then the other changes start. But he agreed that there is no functional difference between the two in the later stages. I hope this helps.

By Trusting On 2015.03.01 20:15
I don't know the difference but know the most frustrating thing for my husband is losing his train of thought or not being able to complete a sentence. This was really getting bad. At our last visit to the neurologist they upped his dose of senement buy just 1 pill. I also have added the coconut oil capsules to his diet morning and evening. I have been amazed at the difference in his thoughts. The dementia is such a scary part of this disease. There is so much I have to learn.

By Lynnie2 On 2015.03.05 13:47
Our specialist is going to see about giving him some medication to help his memory but doesn't want to increase his PD meds.
They will see about it in July as he had lung surgery last month and didn't want to do anything before surgery.

He doesn't have any personality changes or hallucinations but his memory and finishing sentences has been getting worse.
He can barely get things out to tell me when he needs or what he thinks.

By LOHENGR1N On 2015.03.05 18:13
Lynnie, He's recovering from major surgery, with P.D. it's to be expected he'll be foggy and have some problems with finishing sentences.

By Witsend On 2015.03.08 15:44
Lynn, I didn't realize he just had lung surgery. After major surgery, it is expected that he'll have a setback for a while. It once took my husband 3 months after major surgery to return to his pre-surgery state. I'm sorry you are going through this. Please keep us updated.

By Lynnie2 On 2015.03.10 14:02
As I said in my other blog that he is getting along well. His lung surgery where they removed the lower lobe was amazing. He was home in just 3 1/2 days.
His memory isn't really any different then before the surgery. Some days he's okay and remembers things like his pills and other days he gets mixed up. I just have to make sure he takes the pills okay.
I am able to leave him for a few hours and last time he even answered the phone and knew who called and had a little conversation with my friend.
The Occupational therapist is coming tomorrow to help him with tips on dressing, etc.
I am going to buy a rollator walker like the one we are renting. He uses it around the house when doing this walking. He can walk without it, but since the government and our insurance pay for it, I am taking this opportunity to get one now and we'll have it for later.

By JulieB On 2015.03.13 10:58
I'm a little late on weighing in on this, but my husband had Parkinson's and Lewy Body Dementia, not Alzheimer's, and while they can be very similar in some people, they were quite different in Michael.

His memory was pretty good. Lewy Body's classic symptoms of altered states of consciousness (sometimes a person can seem in a trance, then be quite fine soon after) and highly detailed hallucinations were what plagued Michael the most. His hallucinations were tactile also. He had also had sleep disturbances (acting out his dreams) for many years before he was diagnosed, which LBD experts are now saying is a pretty good indicator of whether a person is at risk for LBD in the future.

From what I understand, one of the main reasons it's important to know the difference between LBD and Alzheimer's is the danger of prescribing certain medications to the LBD patient. This could even be fatal.

Here's a link that might give some insight:

Prayers and hugs for you and your dear man, Lynn.

Julie xoxo

By Lynnie2 On 2015.03.13 11:29
The Community Care Assistant Centre nurse came yesterday and assessed my husband.
Besides the Occupational therapist coming (been here twice) they are going to have a speech therapist and a physiotherapist come to do some things.
The nurse was very caring so he is in good hands.
I found a better way to do his daily pills 4 times a day. I found a container that has 4 sections on the top and more sections on the bottom. I am just using the top sections and wrote on each the time of day to take the pills, and we put 2 pills in each section.
This way I know that he hasn't overdosed or not taken enough.

By makrivah On 2015.03.13 19:13
JulieB, excellent article. Thank you.

By jaxrock On 2015.03.14 11:07
Julie, thank you for that article...I've been having so many questions re: my husband's worsening cognition...
His Dr. had put LBD on his chart a year ago, and I really didn't believe it...
But, I do now..
The back and forth is day, really can't think or talk straight...another day, more "normal", even wanting to take walks and go out for lunch..
That article had answers for me....
(He had the sleep problems at least 20 years ago.....had no idea what that was all about....this article explains it.)
Glad we didn't know earlier...we never would have had the great last 15 years in our new location..) Frightening condition. Along with the PD!

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