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Topic Caregivers! Take care of YOU, too! Go to previous topic Go to next topic Go to higher level

By jcoff012 On 2015.10.23 16:23
We are back home after three weeks in Hawaii and ten days in North Carolina...but, those who know us know that we were scheduled for only two weeks in became three when I had to spend a week in Maui Hospital! I had a stroke, but it took two days to track it down, multiple tests, and blood pressure issues...But, I had a stroke in the part of my brain that controls balance....and, after four days they let me go back to rest in Oahu before flying home!
I was lucky..."no evidence of defects"...

The worst part for me was that I worried about Carl being alone, no car, no idea where to spend the night (I was in acute care, so he wasn't allowed to spend the night)...but, he really stepped up....took over everything....and, we made it home!

I guess my advice is to caregivers...take not just your spouse's meds, but your own, and not just his/her doctors' phone numbers, but just never knows...

Hope everyone is doing as well as can be expected...Carl told me he felt "useful" again...I wish it weren't a stroke that gave him that opportunity!

By the way, he did well, we travelled first class, and being able to rest on the plane was worth the extra expense....Jane

By umajane On 2015.10.23 16:43
Hi Jane,
I am so sorry that you had a stroke...and so far from home. I am glad that you made it home and hope you have some help for awhile. It sounds like Carl really took care of things...that is a blessing.
Take good care of yourself. I hadn't seen a post and actually was concerned about
your whereabouts.

By carman96 On 2015.10.24 09:12
Jane, I'm glad you are going to be ok. Hope you had a good time before the stroke.
This is the stuff of nightmares. What if, what if? So glad Carl could handle things.
My husband would not know what to do, which is one reason I don't like to go far with him.
Another thing to think of is In Case of Emergency on your phone. I have my sister and the kids under ICE on my phone.
Take care of yourself!

By lurkingforacure On 2015.10.24 15:25
What a trip! So glad you are back home safe and sound, and that Carl was able to step up and take care of things:)

By jcoff012 On 2015.10.25 12:03
I am doing fine, I think...just incredibly tired all the time. Go to the cardiologist tomorrow...not sure what to expect, since the doctor in Maui said, "there is something abnormal" on the CAT something... My doctor seemed pleased I was able to get in to see the cardiologist so quickly...not worried, just concerned...

Carl has a bad cold and is achy...maybe from putting a roof on his sister's house? Lol.

Anyhow, the point of the original post is if you, as a caregiver, have your own health issues, always be prepared in case of an list of meds I carry came in handy...Carl has no idea what I take or the doses! Take care of yourselves.

By VioletV On 2015.10.25 23:29
Oh Jane,
what a difficult thing to disrupt your Hawaii trip. I hope i goes well with your doctors.

I had not even thought of what we would do if I become ill in some way when we travel. One more thing!

Yes, I do need to take care of myself. I have a recently developed problem with one hip. I am sore and stiff, and can't seem to exercise it away. Another week and I'll head to the PCP's office to see what is up.

Thanks for this reminder, since my husband would certainly be entirely helpless if something happened to me.


By dans316 On 2015.10.26 11:12

Glad things worked out for you. For anyone traveling, cruising etc. I would definitely recommend travel insurance. In January 2010, June fell and broke her hip while we were on a cruise to the Caribbean and while insurance did cover some of the monetary expenses, the best part of the insurance was they made all the arrangements to get June and I home from St Thomas to Lancaster Pa and provided an RN to travel with June.

Me Ke Aloha

By jcoff012 On 2015.10.26 20:08
Latest update...saw the cardiologist and he increased two of my blood pressure meds, told me to "take it easy for three days" til I had a time to adjust to the increase...then get out and walk! Go back next month, right before Thanksgiving for more tests and to see if my blood pressure lowers...Told me to not be afraid, he will take care of me! I feel 500% better!

Bless his PD heart, Carl sat with me and helped me fill out the medical information on the charts.

Thanks for checking in, Dan...thought of you and June a lot...especially in the Maui Hospital...hope you are managing...Love to you and to everyone here!

By Mary556 On 2015.10.27 07:24
Dear Jane, it is good to have you back. Best wishes and prayers for you and yours. Thank you for timely reminder to take good care of ourselves so we will be able to care for our loved ones, those who need us. Being prepared. A good person who helped me yesterday gave me that analogy of being on a plane which has run into sudden turbulance: first you must take care of yourself and reach for your own oxygen mask before you can help person sitting next to you. It is good to remind ourselves.

What a blessing that you have your wonderful, supportive husband and a trusted doctor who gives you such encouragement. I hope you and Carl were able to enjoy some Hula pie while you were in Hawaii. I am remembering a week when I was new to this forum... Dan and Carman and yourself were talking about Hula pie. Al was talking about grieving. I need to reread that thread soon.

I'm very grateful for everyone here who has helped and shared so much. Happy to see new members jumping in. It is so good to have support at stressful times in our lives.
God bless all of our PWPs and caregivers.

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