For those who care for someone with Parkinson's disease
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By flowers12 On 2017.11.24 14:09
By flowers12 On 2017.11.19 13:36 [Edit]
I'm desperate to find a lift bed like the Freedom Rise Bed you can see on YouTube. I've been searching for 3 years and each time I think I've found one or a similar bed being sold in the U.S. I find out they're no longer available. Is there anyone out there that has one or knows where one can be purchased?

I've found this bed and may be able to see a demo. Can you look at it and give me your opinion of how helpful it may be? I have to lift my PWP legs in and out of bed and swivel his body around getting in bed and lift up to get him out. It's taking a toll on my shoulders and back.

By LOHENGR1N On 2017.11.24 14:55
Flowers, If you can see a demo make sure your PWP can go also. Insist that They (PWP) participate. Try it out Let the sellers know that unless PWP tries it out there will be no sale. How much arm strength does the patient have? Watching the clip that upright position spooked the heck out of me! Thighs bent back, butt back with torso pitched forward? I thought fall right away. That is just me, your PWP might react better but before spending money let them give it a couple of run through's . They are the ones who will be using it and no sense buying it if they are scared of pitching out of it face first onto the floor. Especially if they cannot vocalize what scares them or why they don't like or want it.

Another thought that just popped into my head is, most Neurologists and Movement disorder specialists do not promote medicine before bed, maybe ask His Neuro about a small dose of C- Ldopa a bit before bed time? If the patient doesn't take any you are trying to put a stiffening, rigid person exhibiting more symptoms of P.D. to bed. They may be easier to maneuver with a bit of medicine on board. I'm not a Doctor but you might want to run that by his Doctor first to see what they think. The doctor may think it is worth a try. Good luck either way.

By flowers12 On 2017.11.24 16:59
Al, thank you for your input. I don't know why the video doesn't have a person in the bed so we could see the body configuration while moving to a sitting/stand up position. It looks like the way his lift chair works to stand him up. I always control the lift chair and have his walker set up in front of him and hold on to him so he wouldn't fall forward. You're correct in saying that he should try the bed, I was thinking I could try it but then I don't have Parkinson issues.
We've tried giving him a regular and a small dose before bed but nothing seems to help him to lift his legs on his own. This has been an issue for him for about 4 years.

I'm a little leary of the seller because I can't seem to get any company name, number or location. Only email contact and he says "we have local service actually to National Service Company we have the beds made in America". The seller says they are delivering beds in my area soon and can let me demo the bed when the deliveries are made. If I wasn't so desperate to find a bed like this I wouldn't continue my contact.

By fishing15 On 2017.11.24 17:46
I was thinking about getting a hospital bed that raise the upper body up with a pole or rails, that way he and move his legs out.Some time he raise his lift chair to far up and slides out.

By Elaine7 On 2017.11.25 10:47
My dear husband/pwp passed away July 30, 2017, but I still have so many unanswered questions about this damn disease, so I still read all of your posts. My DH had a hospital bed for 2 1/2 years and it was a God send. Medicare paid for it because it was ordered by a physician. So I would recommend that you ask your physician for a prescription for a hospital bed. Also, an Occupational Therapist could be ordered at the same time, to come to your home to show you how to get your pwp out of bed safely for both of you. Sometimes it takes a long time to get the paper work done for this, but I would keep asking so it doesn't get to someone's desk and not move to the appropriate place. Even our OT had to check on it several times to make sure it was moving along. We live in MN/USA. I hope this helps you.

By LC On 2017.11.25 12:22
I have an adjustable bed for DH. I purchased it from a store that makes mattresses. I have them make the mattress as compact as possible so it would be easier to get him in and then adjust his head and feet. Even with that bed I managed to hurt my elbow lifting his feet on to the bed. I wish there was a better solution.

By flowers12 On 2017.11.25 14:56
We have an adjustable bed and I still have to lift his legs on and off the bed. I've had many people, PT, nurse and caregivers show me how to get it done but nothing works. I'm only 4'11" and the people who are showing me are all much taller and I think that makes a difference.

I've found this refurbished hospital bed that helps to sit and stand but I wonder how we would like the looks of a hospital bed in the bedroom? I think if it helped me get him in and out I would love it.

By flowers12 On 2017.12.04 19:15
Well, just my luck!! I decided to buy the hospital bed that was like a lift chair and I was just so happy and relieved to think I wouldn't have to hurt myself anymore lifting my hubby's legs and swivel him into and out of the bed. When I called the company to order it I was told it wouldn't work for home use because it couldn't be turned on its side to fit in a regular doorway and was too wide. I'm so disappointed I could cry. Now I don't know what I'm going to do.

By jcoff012 On 2017.12.04 21:38
Flowers, try Lazy Boy...we got Carl a small recliner for that very fit through the door and goes waaay down...Carl has been having terrible back pain, but says the chair is firm, but comfortable...a tad expensive, if I remember..:

By mylove On 2017.12.04 21:56
Spendy, but really helpful. We just bought a LaZboy lift chair too. It reclines to what they call "zero gravity position" which amounts to neatly flat, but also has adjustable lumbar and head tilt. At this moment, it's all Ben can do to ease the back pain, plus it's helping him get back up with the lift. As Jane said, might be another option to try. We tried sitting in several models before Ben found this one that he liked.

By flowers12 On 2017.12.04 22:25
We have a lift chair however it's not very comfortable. It does all the configurations too and cost $1600. It's very narrow and very firm. I guess I'll look for one of those made for big people so it will be wide. I just don't think he will sleep in it at night though. I wish we were rich and I could get the swivel bed from Europe that costs $15k then things would be so much better for him and me. I'm not very happy right now.

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