For those who care for someone with Parkinson's disease
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| My DH is coming home next week after a choking incident. He was in the hospital for a while and now is in rehab. Apparently he has swallowing issues. They now have him on dysphasia diet. I guess the reality of what the future brings is creeping up on me. His walking, speech, and cognition have declined. Our 45th anniversary is on Saturday. I miss that man I married. |
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I am sorry to read your post, as I am sure others are as well. We all dread the future and somehow coping with the demands of life with PD temporarily blocks us from having to face it. At least for me. But then I'll get a slap-in-the-face reminder of what's happening and where we are in the journey. I don't know why, but it's always a shock, even though I've been on this PD path for over a decade and know what PD brings. Then the grieving starts all over again, for the newest loss, or recognition of where we now are, and it's just so painful. There's no way to it but through it, as the saying goes, but man, it's tough. Hang on, and try to remember that man you married 45 years ago. He's still in there 
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| Mom has had some trouble with swallowing for a while. Two or three years ago, she started taking her meds on a spoon of yogurt, and almost always needs a chaser spoon of yogurt for everything to go down. Since weaning her lorazepam, her swallowing has improved some. If we are at a Dr.'s appointment or something, she can take her meds with water alone without choking. But she no longer eats steak, hamburger, or other things that are difficult to swallow. She can eat chicken, but timing it away from her parkinson's meds is a pain. Generally she has been doing better these last 2-3 months...I think because I took her off her muscle relaxers in December, and sped up her taper off lorazepam a tad. I'm a little bit terrified she might start falling down again, as she broke her L1 in January. Any more falls could be very bad. |