Helping Those Who Care for Parkinson's Patients
| [Home] [Forum] [Help] [Search] [Register] [Login] [Donate] |
| You are not logged in |
|
| ||
|
Hi - I just wanted to mention that I get really put out with people who stare, judge, comment loud enough to be over heard etc. One man commented that my husband should be carrying the bag, not me ! It's none of his business ! but, even if it was , I would tell him that if my husband carries anything , all it will do is throw his balance off ! Also, last Saturday, my husband was robbed on the subway in Toronto. The " person" stole my husband's cane ! I hope that " person" is proud of himself, picking on someone visibly disabled ! Does he pick on small children, the elderly & pets too ? He needs to be locked up permanently ! Jims Wife |
| ||
| Jim's Wife, this is so sad. I am not sure what is wrong with some people. People stare at my Dad too when we are out and about but most times people just offer to help us out whenever possible. I always tell Dad that at age 76 he shouldn't care what other people think any more! But he does anyway. Take care, Mary |
| ||
|
That's sad! My dad is obviously ill and I have been pleasantly surprised that people are very patient with him. He moves very slowly and can block the entrance to a doctor's office or grocery store for quite a while, but most folks give him a smile and help out by holding the door. We seem to have kind neighbors around here, fortunately. |
| ||
| I had an instance where I was taking Dad for his daily walk and some lady came up to me with a bunch of personal questions about Dad. I told her that he can hear and understands her. She continued with her questions. I then told her that it is rude to ask those questions. He is standing right there and can hear her. Just because my Dad needs help does not mean he does not deserve respect. JEEPERS!!!!!!!!! SOME PEOPLE! |
| ||
| Jim's wife: Jim & I both recognize there are many (expletive omitted) 's in this imperfect world of ours. If Karma or some variation of it exists, it is my belief that these folks will ultimately pay a price. Come to think of it ,maybe that is why I am a PD'er Bob C |
| ||
Come on Bob! Feces happens!  The trouble with "Karma" is if you have to pay a price for everything you've harmed, You'll never make restitution. How many blades of grass are in the lawn we mow? (I used to work for the cemetery dept. after high school, that's a lot of mowing!) I know what You mean, if there is a form of justice "out there" payment will be due. But I don't think Parkinson's is anything we earned in that sense.Here's one for You a few months ago a telemarketer called in late morning. My pills were wearing off, my voice soft, speech slurred...as I tried to explain I wasn't interested and please remove my number from their call list. The guy became belligerent! Started yelling that I was disgusting! Drunk at this time of day, just listen to your voice, slurring your words! Sober up and get a life! Talk about a trip to instant agitation, tremors kicking into overdrive it's a good thing We can't reach through the phone ......else I'd probably be in jail now awaiting trial! All I can say is there are some really screwed up people out there! Take care, best of luck and hang in there. |
| ||
| We were out shopping yesterday and my husband asked why everyone(men & women) was smiling at him. He was in his wheelchair and I was putting all the things I was buying on his lap. It was getting a little crowded on the lap. Perhaps it was funny to see him sitting there with items piled up and about to fall. My experience in general is that people are very kind and helpful in the DFW area. Everyone is always willing to open a door or step out of the way. Thank goodness. |
| ||
| My experience with the public has also been pleasant. Everyone opens doors etc. Smiles and says " God bless you " to me while out with my parents. ( When we could go out.) |
| ||
| number1daughter, that's nice they treat You that way and caregivermary, susger8, also. What Jim's Wife, Mary, Bob and I are saying is either to our (Parkinson's patients) faces or in our hearing, needless remarks are made. Sometimes cruel remarks. Your post states YOUR experiences while out in public have been pleasant. People smile and say "G-d bless you!" to YOU while out with your parents (while you still could get out). In the theme of this thread, what did they say to your parents? Did the ignore them while acknowledging you? I'm sure they made eye contact with you while addressing you. That's what we're talking about being treated as second class or feelingless lumps. But I digress and I'm not out to make anyone feel bad, just pointing it out from "Our" view. Take care, best of luck and hang in there. |
| ||
|
Actually, LOHENGR1N, I've found that people in my area (New Orleans) are very supportive and helpful, and it is ALWAYS directed at Dad. (Unfortunately, so were the two negative remarks he got, but that's not much, given the 3 1/2 years I've been with him.) The only thing I ever got was, "Didn't I know you in high school?" from one of the security guards at a mall! All in all, I've been very pleased with the way people have treated Dad. My favorite time was when a lady was with a brood of children who were rushing past Dad through a doorway, and she completely admonished them: "You show RESPECT!" |