Helping Those Who Care for Parkinson's Patients
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I am joining your community for support. My husband was diagnosed with Parkinson's disease about eight years ago. I have been coping by not thinking about it- but in the last year this has been harder to do. My husband never complains and has a great sense of humor. He is very reluctant to discuss his disease, which is quite obvious. In the last year, he seems to have somewhat come out of the closet so it has been easier for me because now friends are giving off less obvious body-type language questions. I am frightened by what lies ahead-should I be hopeful about any research progress? I have kinda given up on this.. |
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Welcome to the board and please don't think that what my husband and I have been experiencing with my FIL will happen to you. I have a close friend who's dad was diagnosed about 20 years ago. He just celebrated his 82nd birthday. I am not going to say that life is perfect for him, but they have not experienced the extreme side affect that my FIL has. Be encouraged and keep posting when you have questions. -Jenny |
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| Welcome to our forum. I would never give up on PD research, for all of the faults of the system we have, there is a lot of work being done, some very promising. Additionally, researchers are increasingly collaborating together, often across the oceans, to find out more about PD. Keep up your spirits, I personally find denial to be a very efficient way of coping at present! You will find the most wonderful, understanding, and helpful people here. |
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Welcome! I am glad you found this forum. I joined this forum years ago when my father suffered with PD and it literally saved my life. You will find great help, hope and strength here. As for giving up on a cure.. We have to keep thinking positive and praying and we can't give up.. I hope you find comfort here like I and so many do. Patti |
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Thank you for the encouraging words. I do appreciate them. These last two days, I have e-mailed President Obama asking him to make a new executive order. I faxed a copy of my e-mail to Senator Dick Durbin asking him to speak to the President on behalf of Illinois families, who believed in this research. I also contacted Hadassah (Hadassah Hospital in Israel is doing cutting edge research) in New York and talked to one of their policy advocates. He was very kind as I vented. They have written the President a letter about ESC. If anyone wishes, you can go to the Hadassah website and under the advocate page- fill out a form letter asking President Obama to issue an executive order. I read on one website that he might issue this executive order on Monday- don't know if that is a rumor or actually correct. Again- thanks! My husband, who usually is not willing to discuss his illness, actually read my letter and complimented me on its contents. That was a first! |
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| What is the executive order? |
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| Annwood: From my fragile hip vs Wickopedia: An executive order from the president (executive branch of govt.) does not require Congressional approval. Example: Bush signs one prohibiting the use of flag draped caskets and Obama recinds it with one stroke of the pen. ESC similarly prohbited but can be revived by exec order. The press reports a likely legal challenge to any attempt to authorize use of any embyonic stem cells icluding the frozen ones used by questionable mothers who need more help than this forum can offer. NOT INTENDED AS A POLITICAL COMMENT Bob C |
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Thanks, Bob Is the executive order supposedly to be given by Obama about stem cells? |
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| Yes, but apparently they are trying to head off the legal challenges. Also it was reported on Friday that Pa. senator Arlen Spector has presented a new bill dealing with SC use. (details unavailable). |
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grin, Im new to this forum too. My husband has been diagnosed with PD 3 1/2 yrs ago. He too doesn't complain just keeps on going. He's been getting worse. I too am afraid of the future for him and me. He's 53. I've been coping with this by ignoring it but I think it's time I step in and and help him. I have'nt read any of the books I bought on PD because I don't want to know anything. I saw Michael J. Fox on tv and was so sad! This forum I think will be wonderful for us. It seems everyone is so helpful and supportive. We are all in this together to help eachother!! We have to hang in there and do our best!!! |