Helping Those Who Care for Parkinson's Patients
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| Did anyone have experience with the Neupro patch before it was taken off the market? My mom was using it & was like a different person. It made such a tremendous difference for her. My sister recently was able to order it from Canada but the cost is about $350 month which isn't covered by Medicare. That expense coupled with paying a sitter while we work is going to drive us to broke very quickly. I'm afraid Neupro won't be brought back to the US. |
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My mother used it for a very short time. Caused huge complications of hallucinations, delusions, etc. Took us months to restabilize her. I understood it was removed because of it's inability to regulate release - not sure of that, but my guess is that was true in her case -- she seemed overmedicated even at the lowest doses. Had so many hopes die but we were hugely releived to take her off it. So odd that the same medications react so differently in patients. |
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It was a disaster for us, husband was miserable and could not give it the week the neuro wanted, it was that bad, and he has a high pain tolerance. But for those it worked for, it sounds great. I heard the company was working out the kinks of the delivery mechanism, that they patch could crystallize which made delivery intermittent and unpredicatable, not sustained. My understanding is that that problem either has been fixed or is being fixed, and the company has applied to the FDA to bring it back to the US---try to google Neurpro under its "News" section and you might find the latest news on it. Hope you can get it, sounds like it was really good for your loved one. |
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| Neupro was the best thing that ever happened to Dad. I hated it when they took it off the market. I wish they would bring it back. We can't afford $350 per month. Sucks. |
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| From what I've been able to find out there is a trial underway in the US involving Neupro. Haven't been able to find out much about it but I assume it's to test the effectiveness of whatever improvements UCB has been able to make. The patches my sister got from Canada are great - no crystals & Mom says she can tell they're more effective than what she was using before. I contacted the FDA last week & they say it's up to UCB to decide if they want to bring Neupro back to the US. Maybe it just takes time but for those like my mom & Tara's dad it seems something could be done to help them now. It sucks big time. |